Help Save Diana Güneş – Brave Girl Fighting Brain Tumour

On the 9th of April 2025, our world came crashing down. That was the day my beautiful sister, Diana, was diagnosed with Diffuse Midline Glioma (DMG) - a rare, malignant, and inoperable brain tumour due to the location. She just turned 9 a few days ago but was diagnosed at age 8, 3 months ago. Only a week before her diagnosis, she was walking, dancing, and attending our aunt’s wedding. What began as a few concerning symptoms - headaches, blurry vision, and loss of balance - quickly became every family’s worst nightmare. Doctors gave us the most devastating news imaginable: Diana’s condition is terminal, with an expected prognosis of surviving 9 months. Only 10% survive 2 years, and just 1% make it to 5 years. Since that day, our entire family has been living in constant fear, heartbreak, and uncertainty. Diana has already endured more than most adults ever will - she’s had a biopsy, the insertion of a shunt to drain excess fluid from her brain, and another surgery when the shunt malfunctioned. She’s completed 13 intense sessions of radiotherapy. Despite it all, her tumour remains aggressive and her condition terminal without further intervention. Since her diagnosis, Diana’s health has rapidly declined. She is no longer able to walk like before and now uses a wheelchair. She has double vision, severe fatigue, and difficulties with balance and coordination. She can no longer do the things she used to love - swimming, attending school, drawing and painting the way she used to. The decline has been cruel, fast, and devastating to witness. Watching her lose the ability to do what once brought her joy is breaking us. She is the soul of our home and the light in all our lives. I’m her big sister, and I love her more than words could ever express. Diana isn’t just my sister - she’s my best friend, my sunshine, my everything. Our lives now revolve around her every breath, every moment - if she’s OK, we’re OK and if she’s hurting, we’re falling apart too. We are doing everything in our power to save her. But the truth is, we can’t do it alone. Please help us give Diana a chance. Not just to survive, but to truly live. To draw, to dance, to become a doctor, to laugh without pain, and to have the future that every child deserves.

Meet Diana

Diana is one of the kindest, gentlest, most loving souls this world has ever known. She is the kind of little girl you meet once and never forget. From the moment she walks into a room, she lights it up with her warm smile, her bubbly energy, and her infectious laugh. She says sorry when she cries, hugs everyone tightly, and always tries to make others feel better, even while she suffers silently herself. Her hobbies reflect just how creative and joyful she is: she loves art and craft, singing, dancing, swimming, and visiting new places. Her teachers adore her. Her friends cling to her. And her family - we live for her smile. But Diana isn’t just living in the moment. She has dreams and big ones. She wants to become a children’s doctor to help sick children just like herself. She wants to take away pain, bring comfort, and give back the love that’s been shown to her. And if she can squeeze it in, she also wants to be an artist - because her imagination never stops. Diana is not just loved - she is cherished. Every single person who knows her feels lucky to know her. She is the baby of our family, our heart, our everything. It breaks us beyond words to know that someone so kind, so full of life, and so undeserving of pain is the one fighting this unimaginable battle.

The Diagnosis

Diana began showing symptoms earlier this year - loss of balance, headaches, and double vision. A scan revealed the unimaginable: a tumour in her brainstem. Since then she’s undergone three surgeries so far: biopsy, surgery to insert a shunt, and another when it malfunctioned. She completed 13 intense sessions of radiotherapy. Despite all this, her condition is considered terminal without further intervention. Diana was referred for a clinical trial of CAR-T cell therapy at Great Ormond Street Hospital, but she was sadly not eligible. Her only hope now lies in ONC201 treatment in Germany — a promising therapy not available in the UK, alongside immunotherapy and supportive care.

Why We Need Your Help

The treatment in Germany gives us real hope - hope that we can extend Diana’s life, ease her pain, and maybe even beat the odds. But it comes at a cost. We are hoping to raise as much as possible to cover the cost - the treatment is expensive, but it’s Diana’s only choice. None of it is covered by the NHS and time is running out. It will help cover:

• ONC201 and supporting medications

• Private medical appointments and emergency care

• Travel and accommodation in Germany

• Urgent scans and interventions

Right now, our entire family is by her side - doing everything we can to make every moment count. But we can’t carry this burden alone. We’re fighting with all we have, but we need your help to keep going. Your generosity could give my sister the chance she deserves. We are so grateful for every act of kindness.

How You Can Help

Donate – Any amount, no matter how small, brings us one step closer to saving Diana’s life.

Share – Spreading this campaign could connect us to someone who can help.

Pray – We believe in the power of prayer, and we ask you to keep Diana in yours.

We will be sharing updates as Diana’s journey continues. Your support means more to us than we can ever put into words. We are grateful for your generosity, thank you.

#HopeForDiana #SaveDiana #DianaStrong #DMGFighter #DMGawareness