Ava is our 16 year old daughter who lost all of her hair this fall due to an anutoimmune disease called Alopcia Universalis. Ava first had Alopecia as a toddler when she lost most, but not all, of her hair. Thankfully at that time her hair slowly grew back. She has continued to battle the disease since she was little but it was not until the past few months that the disease became more aggressive and caused her to lose all of her hair.
Ava wants to live a normal teenage life. She is a straight A student who competes in Science Olympiad and plays competitive soccer for both her club and her high school. We know the best way to provide her with some normalcy is by purchasing a high quality (high cost), custom-made vacuum style cranial prosthesis that she can wear without worry.
Unfortunately, many insurance companies, ours included, do not provide coverage for cranial prosthesis or the other treatments that Alopecia patients require.
Since we cannot rely on assistance from insurance we are raising money to purchase her a custom vacuum style cranial prosthes and also to help pay for the other non-covered treatments and procedures that she may require over the next few years. We would also like Ava to attend an upcoming national Alopecia conference in Washington D.C. this summer where she can meet and network with other Alopecia sufferers and just maybe act as a source of inspiration for other young girls that are affected by the disease.
Alopecia is unpredictable and we do not know if Ava will ever be able to regrow her hair. Many Alopecia sufferers never do. A cranial prosthesis however, can make the disease much easier to live with on a day-to-day basis.
Thank you for your support.
Also, if you could take a minute to request that Congress require insurance carriers to provide coverage for cranial prosthesis (for any reason) please click on the following link:http://www.petition2congress.com/12442/demand-custom-cranial-prosthesis-insurance-coverage/?m=5045141