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KDVS Gathering July 2015

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This is my cause, to raise money for KDVS syndrome gathering in Ashville, North Carolina. Families all over are flying or driving in to meet families of KDVS ( Dr. Koolen and Dr. Devries ) will be attending. These children all have severe medical issues. My son Nicholas has an autoimmune disorder attacking his skin( melanoma) blood( neutropenia) and vital organs such as his spleen and liver. He will need a liver transplant in 1 1/2 to 2 years. I'm trying to make this trip the most memorable! No matter how big or small a donation we appreciate all your love and support

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    Organizer and beneficiary

    Diana Heuermann Giffin
    Organizer
    Riverhead, NY
    ted needham
    Beneficiary

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