I thought I’d update the heading on this page so anyone who is new to it is quickly up to date with the current events.
Please read the following from Ambers Father Jon.
An Amber update for all...
please read the 'Our wishes' part and respect them.
Before reading more... Our wishes
Do not share with your children.
Do not discuss with Amber.
Do not repost this.
Amber doesn't want her friends knowing, she will do this when she is ready.
Back in April, Amber had a routine MRI scan, which had been delayed a couple of months by COVID. An agonising wait due to staff shortages resulted in a late night phone call from her consultant.
The MRI scan showed that a brain tumour has returned but in a different place this time. The tumour is not operable and we were informed by our consultants to 'begin making memories'. We bought tickets and headed to London for a few days and did EVERYTHING and more, we have been to Disneyland and spent some quality days with our nearest and dearest.
We will continue to make each day the best we can. (Photos to follow) Amber seems to have started having symptoms of her illness, with leg pain, headaches and sickness and it is becoming harder to plan and do quite as much. This is also why she has been off school so much. We push through each day holding back the emotions in front of others and Amber, but rely on our concrete marriage and same thought processes to get through each day, we also lean on those close to us who we know will treat life as normal and still bring love and laughter in plenty.
Only 4 days prior to her diagnosis we took the jump and bought a brand new house (still in Horsford) of which was so exciting, but quickly became just a 'thing'. We decided to still go ahead as Amber was excited, and we aim to move around August time.
So now you've absorbed this information so far, let us explain next steps. Amber is now under the palliative care team of EACH (hospice) and we take each day as it comes, yes she isn't feeling her best and has some good and bad days, and school is here n there...but as always, she is smiling and laughing.
All family and those who needed to know, were informed several weeks ago, but we have delayed informing everyone as it's hard to say those words over and over.
Amber is aware that a tumour has returned but that's all, and we intend on keeping it that way, so please respect our wishes.
I have intentionally kept this post formal as it will be hard enough for some to read, let alone if I make it soppy and tougher.
Katie Mathers created the #AmbersArmy page when Amber was first diagnosed years ago which supported us during some tough times and we never thought we would see even tougher days, but we used the generosity of our friends to provide the family with amazing times, many smiles and much laughter whilst having chemotherapy, proton beam therapy and months in Addenbrookes and Germany. Katie has asked if she could open this page again of which we have agreed.
We intend on providing as much normality as possible for Amber...but with many more 'yes' responses and lots more fun hopefully along the way starting with a big party this coming Friday! AmberFest by Make-a-wish We were truly blessed with our little girl and will forever be grateful for every second we have.
We have now had several weeks to process this news and please don't be afraid to ask questions or talk about it with us.
Amber has asked that at the moment, no children or friends are to know about her illness, and she will decide when she wants them to know, so please respect her wishes. This was a big concern of ours, that her wishes would not be followed and her friends would find out before she is ready, so please please do not share with your children and her friends. So we know you'll probably spend the next hour wondering...'how do I reply to that?' Don't worry or think you'll put the wrong thing, we know how we would feel...a simple heart suffices.
Lots of love The Sheehy family xxx
Most of us are parents and those that aren’t I’m sure will not be able to comprehend what this wonderful family is now going through after fighting so hard during Ambers treatment, this really is a awful turn of events.
My main priority right now is to try to support the whole family the best I can, I can’t take the pain away or make living with it any easier but what WE can all do is come together as a community once more and show the family all the love
If you’d like to do any fundraisers please let me know in due course I shall be trying to organise a few things so keep your eyes peeled for those.
Thank you to those that have already donated your all incredible
Let’s go Ambers Army
I’d like to introduce you all to a very special little girl called Amber.
Amber is 5yrs old and currently battling against a brain tumour, although the tumour itself has been removed, she is now about to undergo extensive radiotherapy and chemotherapy in a bid to rid her entirely of cancer so she can return to the childhood she so rightfully deserves.
Its every parents nightmare and it’s happening to an amazing family.
please give whole heartedly and generously just to give this family a well deserved break, so they can enjoy some precious family time all together.
This is the story so far from her father Jonathon Sheehy-
Amber was suffering from migraines and vomiting and so was taken to Drayton surgery where the amazing doctor advised of an eye appointment, the optician saw Amber within days and advised going to N&N hospital straight away, she went to hospital and they gave her a Cat scan and found a tumour and within hours we as a family were at Addenbrookes hospital for the night for an MRI scan. After several scans and checks they found a tumour that would need urgent removal and gave us only a couple of days to prepare which meant not being able to leave hospital. We were looked after and put in a shared house by the Sick children's trust which is simply amazing. Amber had surgery which lasted 8 hours and then spent several nights in intensive care as she had breathing problems. A few days on and Amber is recovering slowly and beginning to walk but struggling with opening both eyes properly. A week after surgery we were informed she had cancer and would need to undergo radio and chemotherapy which will be around a year, the radiotherapy could possibly be carried out using a new technique only available in Germany so possibly the way forward being supported by the amazing NHS. We hope to take Amber home next week for a short time before her year of treatment begins which will involve thousands of miles of travel back and forth to Cambridge, Germany maybe and hundreds of other appointments.
Fingers crossed she has a good recovery from treatment and has her brother by her side as her best medicine so far.