Put an end to the Sarcoma

It all started back in November with a simple back pain. Throughout the weeks, the pain kept getting worse and worse. One day it was so bad that I couldn't sleep and had to miss work. After this it just got worse and I haven't been to work ever since. 

We seeked help with our primary doctor and he thought I had piriformis syndrome, which explained why I couldn't sit down or walk for long.  

I went to Urgent Care multiple times to get injections for the pain because I just wasn't able to sleep and I was going crazy. I got sent to physical therapy 3 times a week for 4 weeks. By the last week of therapy I realized that my condition wasn't getting any better. 

When physical therapy ended and we realized that it wasn't working then it was time to get an MRI.  But by that time the year was ending and many doctors were out of town, so I was in pain for many days before anything could be done. When my Primary doctor came back from vacation I was denied the MRI. Imagine how I felt when I heard this. I had to wait until 2018 to get a new insurance and then make a new appointment with a new doctor. Everything seemed like it was going so slow and with no improvement. 

When I saw the new doctor, she was very attentive and ordered and MRI right away. I was sent to get the MRI done. The results were shocking... The diagnosis said:
"Expansile mass within the S2 level of the sacral canal filling the canal with extension/destruction of the right sacral alar. Dimension of 2.3cm This appears malignant"

When we saw this report, my family and I were really scared. We all thought it was a mistake and that it surely was something else. So we hoped for the best. 
Not much else could be done from the MRI so I had to get a bone marrow biopsy. 

After getting the results from the biopsy the doctor called us the next day and told us to come in at 8am. 
We were in the room and he gave us the bad news. Ewing's Sarcoma, he said, is what you have. This is a really rare type of cancer. It is a soft issue cancer. 
We all were really sad as we didn't expect this. 

These funds will help me to pay for my treatments and any medical expenses that I will have for the cancer. I do not know what type of treatment I'm getting but I will keep this updated as soon as I get news. 

Thank you so much and God bless.

Para mis amigos hispano-hablantes <3

Todo empezo en Noviembre con un simple dolor en la espalda. Pasando las semanas, el dolor se hacia peor y peor. Una dia el dolor era tan fuerte que no pude dormir y tuve que faltar al trabajo. Despues de esto simplemente empeoro y no he podido trabajar desde entonces.

 Buscamos ayuda con nuestro doctor primario y el penso que tenia sindrome de piriformis, que explicaba el dolor y porque no podia sentarme o caminar mucho.

 Fui al Urgent Care muchas veces para que me inyectaran para el dolor porque era muy fuerte y no podia dormir, sentia que me estaba volviendo loco. Me mandan a terapia fisica por 3 veces a la semana por 4 semanas. En la ultima semana de la terapia, me di cuenta que mi condicion no habia mejorado.

 Cuando la terapia fisica termino y nos dimos cuenta de que no estaba ayudando, luego decidimos sacar una resonancia magnetica. Pero para ese entonces el ano se estaba acabando y muchos doctores estaban de vacaciones. Cuando mi doctor primario regreso de vacaciones, me negaron la resonancia magnetica. Imaginate como me senti cuando escuche esta noticia. Tuve que esperar hasta el proximo ano 2018 para cambiar a un seguro nuevo y luego hacer una nueva cita con el doctor nuevo. Todo parecia que se movia muy lento y sin mejorar.

 Cuando finalmente consegui la cita, mi nueva doctora fue muy atenta y me mando a sacar la resonancia de inmediato. Los resultados fueron sorprendentes...

El diagnosis decia asi:
“Masa expansiva en el nivel S2 del canal del sacro con extension/destruccion de el alar sacro del lado derecho. Dimension de 2.3cm. Parece ser maligno.

 Cuando mi familia y yo vimos el reporte, nos espantamos mucho. Todos pensamos que era un error y que seguramente se trataba de algo mas simple. No se podia decir mucho de la resonancia, asi que tenia que ir a hacerme una biopsia de medula osea.

 Al recibir los resultados de la biopsia, el doctor nos llamo al siguiente dia para que fueramos el dia siguiente a las 8 am. Estabamos en el consultorio con el, y nos dijo, Ewing’s Sarcoma. Es un tipo de cancer muy raro. Es un cancer de tejido blando. Todos estabamos muy tristes porque nunca esperabamos algo asi.

Los fondos que se junten con esta fundacion iran para mis tratamientos y para los gastos medicos que se necesiten durante mi tratamiento para el cancer.

Muchas gracias y que Dios los bendiga.   


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Roberto Madrigal Kuri 
Delray Beach, FL
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