Supporting Jayde's Journey at Home

Jayde just turned 5 years old in March of 2024. We are a family from The Bahamas and we moved to The States after losing everything in Hurricane Dorian on September 1st, 2019. She has been seeking treatment from Boston Children’s Hospital since November 2020.

Jayde has Holoprocencephaly. She can’t sit up, crawl, walk or talk. She stopped eating by mouth and had surgery and got a gtube placed in her tummy January 2021. We have been very lucky with no worry of seizures until recently and she will be getting a EG test done as soon as we can. I am a single mom of 3 and I am not working as I am my daughter's primary care giver.