UPDATE #2

my work, Kenworth truck centers in Barrie let me go this morning, Jan 5th 2026, because I have missed too much time from work to stay home with Alora when she’s in hospital or sick and cannot attend her daycare, this is all just so much especially at this time of year, “ we must part ways as I need someone one the counter, but use us as a reference, as when your here your performance is great and we won’t say anything about missed time” is what I was told today, my termination letter states my services are no longer needed. I was already struggling enough as a single income home and now I’m a zero income home until I find employment again, and it’s just incredibly scary and full of unknowns. I need your help more than ever, if you know of anywhere hiring please email me the information,

all funds raised will help cover household bills and food, ambulance bills, medications that aren’t covered by Ohip as I do not have benefits,

if you don’t want to donate via the go fund me, you can send me a message via this and I can provide me email address for direct e-transfers

please share share share ❤️

UPDATE #1

A little update for people following along, we had another episode, Christmas Eve Aloras temp spiked to 39.6 around midnight, she was vommiting profusely, I did give her Tylenol and she did keep it down, however 7 mins later she starts seizing, this one was completely different then any of her seizures, this was full blown violent tonic clonic seizure, enough that she moved herself across my king size bed during the episode, luckily rescue meds worked pretty quick this time to pull her out, the strange part is she didn’t enter her usual postictal state and was alert and talking. Big sissy was home so I had to wake her up to help me get things ready to head to hospital, luckily the paramedics allowed Alora to ride alone so I could follow in my car and not have to wake family up to bring me my car, so I was thankful of that, she was monitored till her heart rate dropped back down, then we were sent home around 4am, Aloras had a fever since, and symptoms of a viral illness, but today she’s been wanting to eat and drink more which is a good sign, hopefully her fever breaks soon, we are now day 4 of this sickness and it is rough,

My name is catherine, Alora is my sweet yet sassy 2.5 year old, August 22nd 2025 she had a 30 minute seizure which has started this chaotic and unknown journey for her, since that date she has had 8 other episodes requiring ambulance to hospital, the latest episode was just last night ( Dec 15th ) when a atypical/afebrile seizure happened out of nowhere, Alora became limp and unresponsive and stopped breathing altogether, instantly turning blue and grey in the face, this was probably the most scary episode yet. During the last 3 months she has been having febrile and afebrile seizures; was started on keppra ( anti seizure medication) sept 7th and also has rescue meds that I can administer during an episode while waiting for EMS, we have undergone a head ct, head mri, two eegs which all show normal results, yet her sick kids neurologist says epilepsy, today before being discharged we have been instructed to start a second medication clobazam to assist in hopefully preventi by her seizures that seem to be resistant to medications, and also have done some blood work for a microarray genetics testing that sick kids lab will perform to hopefully get to the the bottom of this. Her neurologist updated me today that there is a chance that we could be facing something called dravet syndrome which is incurable and a deteriorating terminal form of epilepsy, we PRAY this isn’t the case, for once I am hoping this test come back negative for the SCN1A gene mutation. We will know in 2-4 weeks when results are in. For now I hope this medication addition will help Alora.

I am explaining all this and asking for help as I am financially struggling as a single parent trying to hold my household together for myself , Alora and my oldest daughter Ava, Especially at this time of year with Christmas just next weeks I just started full time employment November 3rd after 3 years of schooling and have had to miss a lot of time from work ( which is my only source of income to cover my bills and expenses) due to appointments and hospital admissions as when Alora cannot attend pre school I am the only person that can stay home with her, missing numerous days drastically effects my income, and with ambulance bills are coming in the mail at $45 each (8 so far) plus all the hospital parking and expenses during our stays; I do not have benefits at my work yet to offset these costs, her father is unfortunately not an active figure in her life at this time, my family helps where and when they can but I am at my breaking point of asking of help from anyone who may be able to help,

even if you cannot help, please just pray that this is not dravet syndrome and we will get to the bottom of all this so Alora can hopefully live as much of a normal childhood/life as she can, and share Alora’s story ❤️

I just wanted to say thank you to everyone for their support in whatever way they’ve helped/donated shared or even just sent sweet messages and wishes for Alora ❤️