Raising money for Gemma

We are raising money for Gemma Stone, a 2 and a half year old who was diagnosed at 5 weeks old with a rare genetic condition called WWOX WOREE.

WOREE syndrome has severe impact on the brain development, causing drug resistant epilepsy, severe visual impairment and cognitive delays. Children with this condition rarely walk or talk. The complications of this condition mean the average life expectancy is 4 years old.

WWOX WOREE has no cure.

Gemma has ongoing hydrotherapy and physiotherapy to help with high tone muscles due to her daily seizures.

We are hoping to to raise enough money for a float to assist with hydrotherapy and any other equipment that Gemma may need.