I am diagnosed with Alport Syndrome, Q87.8. I'm told by a high risk pregnancy nephrologist my kidney's would more than likely fail after giving birth. There is also a 50% chance with every child they will inherit Alport Syndrome.
Between IVF, PGD, PGS, lawyer fees, surrogate, their medical fees and lost wages it will be over 100,000 dollars to have a child even before they're born!!
This is a devastating disease for both males and females. Both genders can transition to end stage renal disease. This means they will need to go on dialysis and be put on a waiting list for a kidney transplant. If I carry a child I will be become ill and could potentially die, this will have a grave effect on my husband and new child. In lieu of having a natural pregnancy, I want to prevent my child from inheriting the disease as well as protect myself through IVF, PGS, PGD and gestational surrogacy.
Between IVF, PGD, PGS, lawyer fees, surrogate, their medical fees and lost wages it will be over 100,000 dollars to have a child even before they're born!!
This is a devastating disease for both males and females. Both genders can transition to end stage renal disease. This means they will need to go on dialysis and be put on a waiting list for a kidney transplant. If I carry a child I will be become ill and could potentially die, this will have a grave effect on my husband and new child. In lieu of having a natural pregnancy, I want to prevent my child from inheriting the disease as well as protect myself through IVF, PGS, PGD and gestational surrogacy.
Organizer
Jen Sousa
Organizer
Newtown, CT