Protecting my child from disease

I am diagnosed with Alport Syndrome, Q87.8. I'm told by a high risk pregnancy nephrologist my kidney's would more than likely fail after giving birth. There is also a 50% chance with every child they will inherit Alport Syndrome.  

Between IVF, PGD, PGS, lawyer fees, surrogate, their medical fees and lost wages it will be over 100,000 dollars to have a child even before they're born!!

This is a devastating disease for both males and females. Both genders can transition to end stage renal disease. This means they will need to go on dialysis and be put on a waiting list for a kidney transplant. If I carry a child I will be become ill and could potentially die, this will have a grave effect on my husband and new child. In lieu of having a natural pregnancy, I want to prevent my child from inheriting the disease as well as protect myself through IVF, PGS, PGD and gestational surrogacy.

Donations ()

  • Nelson Borges 
    • $100 
    • 6 mos
  • Donna VanPelt 
    • $50 
    • 10 mos
  • Melissa Brennan 
    • $500 
    • 10 mos
  • Tony Seing 
    • $20 
    • 12 mos
  • Denis Kobas 
    • $50 
    • 13 mos
See all


Jen Sousa 
Newtown, CT
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