Addi Strong

$86,150 of $100,000 goal

Raised by 1,440 people in 10 months
Created August 24, 2018
My name is Lindsay and I'm reaching out to you all from Northeast Georgia in hopes of raising funds and obtaining prayer for my dear friends of nearly 20 years, Warren and Leanne Masten. Their niece, Addi, whom they're raising, has been diagnosed with cancer. The funds we raise will be used to alleviate any uncovered medical expenses,  travel expenses, and help supplement the income the Mastens will not receive due to missing work being with Addi in the hospital. 

Addi is a beautiful, happy 2-year old girl who was recently diagnosed with neuroblastoma (a rare cancer often diagnosed first in the adrenal glands atop the kidneys).  Addi was rushed to the ER after her aunt and uncle (Leanne & Warren Masten) became concerned that she was experiencing pain in her side.  While at Scottish Rite, doctors found a mass the size of an apple on one of Addi's kidneys, along with another spot on one of her lungs.  It has been determined that Addi has neuroblastoma and will need chemo treatments to shrink the tumor before it can be removed.  Addi's family is currently awaiting a full-body scan that will determine if the cancer has metastasized to other regions of her body.  

Medical Professionals haven't provided the family with a timeline of how long she will be in the hospital.  Leanne has used all of her paid time off and Warren is working as many shifts as possible to make up for this.  Addi needs her LaLa and WaWa with her, so this campaign will help to relieve some of burden of them missing work to be with Addi.  

Any amount you are willing to donate is appreciated and beneficial.  Let's come together in prayer and support of Addi and her family during this trying time!
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Update on Addi: Addi started radiation last Monday May 20 and will have 12 rounds of radiation at Emory. She has bouts of nausea/vomiting and is tired but overall she is tolerating it well. After radiation, the doctors will let Leanne and Warren know what the next steps are but as of now they just don’t know. Because of her damaged liver her treatment options are minimal so the doctors are exploring other options to keep her cancer from reoccurring. Your prayers are appreciated as Addi goes through the next steps of her journey.
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UPDATE!

Our pink butterfly ice cream princess......
Addi is doing great and had a great week. She has been asked to be the ambassador for the March Of Dimes for our community. We went to our first meeting with the team on Monday of last week. We really enjoyed meeting everyone. Then she had to get some blood work at our local hospital. As usual she enjoyed seeing our favorite nurses. These wonderful nurses love Addi so much and we had the funnest visit today with LOTS of laughs. Those belly laughs are the BEST!

Addi has a doctors appointment with her oncologist on the 8th to get her cleared for radiation. Then her first appointment at Emory to see the Radiation Oncologist is on the 10th. They will evaluate her to see if she can handle the radiation and if so get everything set up to get that started either end of May or first of June. Please be in prayer with us that she will have minimal side effects and handle this like she has everything else....like a warrior!
Me and Addi had fun with these sweet pink ice cream pictures. She loved the idea to dress up like a pink butterfly and have a pink ice cream picnic. She loves pink, butterflies and pink ice cream so she was in heaven. Had to get these pictures in preparation for her pink ice cream party. Being a photographer is so much fun when you have a beautiful baby girl to be your subject!

I’m so excited about Addi’s 3rd Birthday Bash and enjoying the planning. It’s going to be a great time and I can’t wait for her to see it all. Pink Ice Cream overload! If you don’t know the back story about the pink ice cream go back and watch the video. It’s priceless! I’ve been asked about when her birthday is....May 26 and also asked about gifts or things she needs or wants. We truly appreciate that so many want to bless her on her birthday but...Please NO gifts. This child is so blessed she will probably never play with all the toys she has now. If you really want to do something for her, send her $3 in a card and after her birthday we will take her and let her pick out a few things and donate what’s left over. Knowing her it will be a $2 bag of sour worms so we will donate to one of our favorite pediatric cancer organizations. Or donate to your favorite charity in honor of her birthday. This is all I could come up with for all that have insisted on sending her something. She loves the cards and we enjoy opening them and reading them together so your prayers and happy birthday wishes are all she really needs.
Cards can be sent to:
Addi’s Journey c/o Leanne Masten
P. O. Box 99
Toccoa, GA 30577

My former employer MSA started a Relay for Life team in honor of Addi! We are so excited to support such a wonderful cause in our girls honor. Addi has also been asked to lead the survivors lap on May 18 in Seneca, SC. We are so humbled, honored and extremely blessed that she can walk that survivors lap!!!! Warren (WaWa) is a brain cancer survivor, I am a melanoma skin cancer survivor and then we have our little Addi, so we will walk that lap with a grateful heart that God has seen fit for all 3 of us to walk in honor of the ones who are fighting and to walk in memory of those who lost their battle to this beast!
Please follow the link to the team page and donate for Addi and all who are fighting the fight. I personally will advocate for more pediatric cancer research!
https://mobileacs.org/2J8GtLW

Oh yeah....her hair is growing back. We’ve come to love her bald and she’s just the cutest little bald headed baby but her hair was gorgeous so I’m excited it’s coming back. Her eyelashes and eyebrows literally grew back overnight.
Thank you for the continued prayers and love. We appreciate them more than I can tell you in words.
Here is the link for shirts. I was asked not to stop selling the shirts just yet so I’m going to continue for a while longer.
https://www.bonfire.com/store/addis-journey/
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Update on our Princess Addi!



Day at the Zoo before surgery......

We enjoyed a fun day today at the Atlanta Zoo on Tuesday! We stayed in Atlanta so we could be close to the hospital since Addi had to be there so early on Wednesday for surgery. Addi loves animals so she was in heaven and had the best time. We are so excited after all this time to be out and enjoying life with her before next treatment starts. It is so awesome to see her being a typical 2 year old, smiling and enjoying fun things like most kids her age. I run behind her everywhere we go with hand sanitizer like a mad woman but I want her to be a kid so we are just very cautious and keep her in a stroller as much as possible and away from people. She’s just so friendly and like a little magnet so people are drawn to her. She’s usually so sweet and talks to everyone but there are those shy times too.





The surgery was to remove the drain tube. She did so well, just like with everything else. I get nervous because she has been put to sleep so many times but in normal Addi style, she handled it like a champ. God is taking care of this baby every step of the way. She was so excited when she woke up and the tube was gone. She hated getting her stomach drained and would scream and cry every time she saw the PleurX container to drain the fluid in. So thankful that is one less thing we have to do everyday!
Great news from her Hepatologist.....liver numbers are pretty close to NORMAL!!! Her albumin level was normal for the first time in 2 months! That’s huge for her!!!! Praise!!!! She will have a week or so to heal and recover from this surgery then she has a doctors appointment first of May to discuss treatment and next steps.
I wanted to make sure all of Addi’s new followers saw this blog post about our family dynamics. I get the most questions about it. I’m Addi’s aunt (LaLa) and she lives with me, my husband Warren (WaWa) and daughter Alexis (Texas). You can read the rest here.....
https://www.addisjourney.com/…/addis-journey-welcome-to-add…
Don’t forget to check out the new shirt design. It’s awesome!
https://www.bonfire.com/stronger-than-cancer-1/

Thank you for all who have followed my photography page Leanne Masten Photography and booked a photoshoot with me. I can’t tell you how much I appreciate it.
Thank you all for your continued love, support and prayers. Addi is so blessed to have an army of people praying for her. I’m in awe everyday of God’s love and grace. Just remember after every storm there comes a rainbow. Keep your eyes fixed on that rainbow until the storm passes. Storms don’t last forever....we can’t always change the course of the storm but we can change how we decide to wait for it to pass. Just be still and know He is God and wait on Him to move for you. Be encouraged today. Much love ~ LaLa
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Unfortunately, Addi did not get to go home as planned and as hoped. However, doctors did go ahead and drain nearly 1000 ccs of fluid from her belly and she is feeling much better. I wanted to share this post from Leanne's Blog from last night... after reading this, I definitely need to reevaluate my own perspective on things and look up way more often than I do! Have a great Monday!

Perspective........
Over the past 42 days I’ve experienced so much emotion watching all Addi is enduring and this never ending roller coaster ride. I’ve also witnessed the emotion of others......I’ve looked into the tear stained eyes of a mother who just found out her baby has cancer and heard her desperate cry. I’ve heard the sorrow in a father's voice as he says there are no more options for his son and it’s just a matter of time as he tries to keep it together for his family. I’ve heard the screams of a mother as her baby was taken off life support and went to heaven. I’ve seen the sadness in the eyes of a mother who has spent many sleepless nights at her daughter's bedside as she screams in pain and vomits continuously from the toxins going in her body to kill this beast called cancer. I’ve watched health professionals run down the hall as the code blue is alerted and another child is in distress and at death's door. I’ve cried with a mom and held her hand who has gotten news that her son has relapsed again for the third time. I’ve listened to the sadness in a nurses voice as she explains they’ve lost 17 patients since January to this horrible disease and the grief she experiences of each child that has become family. Oh my the emotions, the heartache, the pain and the desperation of the parents and families of a child fighting cancer. There are just no words to explain it......

It’s truly an humbling experience yet painful to see the children who are bald with rashes all over their bodies, who are pale with brown circles under their tired eyes, who are thin from not eating or bloated from the steroids, walking the halls attached to an IV pole with tubes coming out of every orifice of their body. You see their pain as they just want a normal life free from the cancer like other kids their age. I will admit there are times I just can’t make eye contact because the pain is so evident and I don’t want them to see the sadness I feel for them. It’s humbling, it’s heartbreaking and it brings you to your knees.

So as I sat here tonight thinking about these long, grueling days in the hospital as Addi fights for her sweet little life....I am also grateful...grateful Addi is still here fighting and grateful for my own children’s good health. I’m thankful....thankful for the gift of Addi’s life and the joy she’s brought to my life, my families life and all who know her and even those who don’t. I’m hopeful....I’m hopeful that Addi is going to get better and come home soon and I’m hopeful for a CURE for all these babies battling this terrible disease. When you pray...pray for all these kids who are battling this disease and pray for their families because you can’t even fathom what they are enduring until you’ve walked a mile or these HALLS in their shoes and I pray you never do!
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$86,150 of $100,000 goal

Raised by 1,440 people in 10 months
Created August 24, 2018
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