Hi, my name is Sophie and I was diagnosed with functional neurological disorder (FND) in 2024 after suffering from PNES seizures. After an MRI they noticed something had showed on my scan so went forward to order a CT scan with extra contrast, it was very noticeable that metal was in my head. My mum spoke to my consultant and shared concerns of a cannula being in my skull at birth as that was where the metal was picked up on the scan therefore confirmed my mum’s concerns. I am having seizures multiple times a day, paralysis of all my limbs resulting in very limited mobility and severe pain in my joints. I am pretty much reliant on my wheelchair for most things and it is having such a detrimental effect on my mental state.

Since october 2024 it has been a constant battle to reach a doctor who understands my case. I am still fighting to get the help and treatment I need but the cost of private specialist care is just simply something my family and I are unable to provide alone. Please if you could share this post and anything is greatly appreciated.. Thank you