Hi, my name is Ross and I have been on and off battling High-Grade Osteoblastic Osteosarcoma (aggressive form of bone cancer) for the last 8 years, I was first diagnosed around my 19th birthday following 6 months of unexplained knee pain which led to an X-ray and biopsy which discovered the cancerous tumour, I then received 6 cycles of harsh chemotherapy and a knee replacement.

I then spent 2 years in remission until unfortunately a routine check up showed reoccurrence in my lung, to which I had one major surgery to remove only for then a few months later another lesion to show in the same lung. This meant that I ended up having 2 major lung resection surgeries and they also decided to give me another 6 rounds of chemotherapy with the hope of stopping it from returning again.

I then spent another 18 month to 2 years in remission again before another routine checkup showed another reoccurrence, this time in my brain.

I then had a successful surgery where the whole tumour was removed from my brain and I was put back on surveillance however in the next checkup scan it showed another tumour was growing nearby. So shortly after recovering from the first brain operation I was back in for another one in which the tumour again was fully removed but a lot of bleeding occurred on the second operation.

Scans following the second operation showed that there were again more lesions showing up in the brain to which some were targeted with gamma knife radiotherapy which helped reduce the size and growth.

At this point I was sat down by my oncologist and given the reality of my situation which was that this would now be terminal meaning they don’t believe they would be able to eradicate the cancer from my brain in anyway.

I have been told that my exact situation with osteosarcoma is extremely rare and that they never usually see this type of cancer spread to the brain by itself it would normally have overtaken multiple other organs aswell. So in this instance despite it being incredibly rare I can also consider myself lucky to have other parts of my body still clear.

My last brain surgery was March 2025 followed by radiotherapy in April, and then I was given the option to try a chemo drug called Cabozantinib, which was being used for someone in my situation for the first time in the hope that it would stabilise the tumours growth and keep all the remaining tumours the same size. Lucky enough this trialled drug worked for me and I have been taking it continuously since May 2025 til present with stable disease up March 2026, where I noticed several lumps growing on my skull.

A scan in March then showed a number of skull tumours and one new small brain tumour as to which I have been given two weeks of radiotherapy which I am currently undergoing that began on June 1st.

The radiotherapy is not expected to get rid of the new tumours, just maintain the growth and slow things down.

After this course of the radiotherapy from the NHS it is likely that they will have no further treatments to offer me. They have already suggested palliative care and referred my to Phylis Tuckwell Hospice for care for the end of my life, however I have always managed to remain positive and find belief within myself that I can overcome what’s in front of me or at the very least prolong my life much longer than the NHS may suggest is possible.

This is why I have now come up to set up a gofundme.

Myself and my family are constantly researching and digging around the depths of the internet to find anything that may give us extra time together and it has became apparent that there are lots of places across the world that have more advanced and different levels of access to various cancer treatments, lots of which are not available to the NHS. I have recently reached out to Professor in Germany who took a look at my medical records and scans, and he was able to give me a treatment plan with a goal of further prolonging a stable disease that I could manage day to day with.

Upon further research I believe I will be able to find more options for further treatments and therapies that will help extend my time here.

Obviously these kinds of treatment are from private medical companies so I am therefore asking for donations to go towards any potential further medical treatments I may be able to find.

Thankyou