PRINCESS WARRIOR MONNAY FUND

Hello my name is Kelly and I have a daughter who has a complexed condition called Battens Disease and her sub type is CLN6. Over the years monnay has fought and continues to fight every day despite her condition and the complications and with the condition beennpife limiting and her needs becoming more complexed daily living for our family is very strained.

It would be amazing if we could raise funds for monnay to have amazing experiences and to eliviate some of the pressure of the daily living that we are enduring.

Daily monnay needs to have suction intervention and nebuliseing and her she hoist equipment also and peg feeding all of which have to remained charged.

Due to the nature of monnays condition it is sadly life limiting and I want to be able to give her all she needs and desires whilst we are blessed to have here with us. So any help no matter how small will make a massive difference to her and her quality of life