Princess Brooklynn NPHS2 Fight
Donation protected
Help Support Princess Brooklynn!
On April 26, 2018 Brooklynn was diagnosed with NPHS2 which is a very rare condition. Brooklynn's kidneys will eventually fail her and she will have to start the Kidney transplant process.
Brooklynn’s story started at her 5-year-old routine checkup. Her pediatrician does a urine test as part of the regular check- up and the test showed protein in her urine. She had protein in her urine, very high cholesterol and a few other abnormal labs.
They started a standard course of steroid treatment and expected her to respond quickly and stop the protein from spilling from her urine. Unfortunately, this did not happen and after 6 weeks of treatment her levels of protein had become worse and her albumin became low. So they decided to move forward with a biopsy.
The genetic testing showed there were two gene mutations and she was diagnosed with NPHS2. With this new diagnosis her Family decided to travel to Boston Children’s Hospital to meet Dr. Somers who has familiarity with this condition and they are now under his care.
Please help to support Princess Brooklynn, as her family continues to prepare for a Kidney Transplant and visit's to Boston Children's Hospital. Brooklynn's mom Melissa or dad Ryan will be looking to give Brooklynn a Kidney if they can. This will require time off of work, and extensive medical bills, as well as caring for Brooklynn and her older brother Jaxon.
Please Help Support Princess Brooklynn!
On April 26, 2018 Brooklynn was diagnosed with NPHS2 which is a very rare condition. Brooklynn's kidneys will eventually fail her and she will have to start the Kidney transplant process.
Brooklynn’s story started at her 5-year-old routine checkup. Her pediatrician does a urine test as part of the regular check- up and the test showed protein in her urine. She had protein in her urine, very high cholesterol and a few other abnormal labs.
They started a standard course of steroid treatment and expected her to respond quickly and stop the protein from spilling from her urine. Unfortunately, this did not happen and after 6 weeks of treatment her levels of protein had become worse and her albumin became low. So they decided to move forward with a biopsy.
The genetic testing showed there were two gene mutations and she was diagnosed with NPHS2. With this new diagnosis her Family decided to travel to Boston Children’s Hospital to meet Dr. Somers who has familiarity with this condition and they are now under his care.
Please help to support Princess Brooklynn, as her family continues to prepare for a Kidney Transplant and visit's to Boston Children's Hospital. Brooklynn's mom Melissa or dad Ryan will be looking to give Brooklynn a Kidney if they can. This will require time off of work, and extensive medical bills, as well as caring for Brooklynn and her older brother Jaxon.
Please Help Support Princess Brooklynn!
Organizer and beneficiary
Tara Gruber
Organizer
Itasca, IL
Melissa Janik
Beneficiary