On October 10, 2018 Ava was diagnosed with Acute Flaccid Myelitis. This disease has paralyzed her from the neck down. She is on a ventilator 24 hrs a day because she can not breathe on her own. She now has a g tube to receive nutrition. We spent 4 weeks in Johns Hopkins PICU. We are now at Kennedy Krieger Institute for rehabilitation with a possible discharge date of January 30th. Ava receives 6 hrs of therapy a day, including physical therapy, occupational therapy, and speech therapy. When she isn't in the spine gym she receives respiratory therapy to clear her lungs and strengthen her diaphragm. We are still in shock from having a full of life 4 year to a quadriplegic daughter literally overnight.
264 Laguna Circle
Severna Park MD 21146