Princess Baby Bird AFM

On October 10, 2018 Ava was diagnosed with Acute Flaccid Myelitis.  This disease has paralyzed her from the neck down.  She is on a ventilator 24 hrs a day because she can not breathe on her own. She now has a g tube to receive nutrition. We spent 4 weeks in Johns Hopkins PICU. We are now at Kennedy Krieger Institute for rehabilitation with a possible discharge date of January 30th. Ava receives 6 hrs of therapy a day, including physical therapy, occupational therapy, and speech therapy. When she isn't in the spine gym she receives respiratory therapy to clear her lungs and strengthen her diaphragm. We are still in shock from having a full of life 4 year to a quadriplegic daughter literally overnight. Amanda Janeski 264 Laguna Circle Severna Park MD 21146

Donations (0)

  • Anonymous 
    • $50 
    • 3 d
  • Anne Harrington 
    • $25 
    • 7 d
  • Anonymous 
    • $2,000 
    • 8 d
  • Jill Wortman 
    • $30 
    • 11 d
  • Anonymous 
    • $50 
    • 1 mo

Organizer

Amanda Newquist Janeski 
Organizer
Severna Park, MD
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