Melissa doesn't know i am creating this...well she does now... :)
(written by mommy Melissa)
My heart is left broken...... Yesterday I walked into a clinic room to discuss the few respectable images we were able to retrieve before abandoning Dorian's MRI of his right humerus and shoulder. The scan was getting lengthy and he was fidgety. It's alright, we'll just reschedule the scan and use sedation. I walk in the room and Dorian's oncologist follows.....then our social worker walks in after him. "Stephanie, what are you doing in here?!?! No no no!!! Get out!! WHAT ...THE .....?!?!?!" There is only one reason for her to be there. Only one. One. One reason. No words are said. I put my head between my knees and try to catch my breath. Still no words are exchanged. None are needed. I catch myself before I crumble to the floor, and I cry until my eyes are swollen. Today a CT scan confirmed my worst fear. A PET scan made it worse. Dorian's right humerus bone is grossly invaded by rhabdomyosarcoma. He has Rhabdo spots on a rib bone, both legs and a solid tumor under his right knee. My sweet child has relapsed again. This time while he was active on chemotherapy. My boy. My son. My world.
Options are heartbreakingly limited. Together, Chris and I both decided that we are not willing to give up. We head back to Hasbro tomorrow and will begin mapping for radiation. D will have his 104th radiation session Monday morning and will continue daily treatments for 4-5 weeks. We will discuss chemo options for Dorian. At this point, chemo is merely a short term solution to slow progression of disease until we can research and decide on other therapy options.
I can't describe how painful this is. My heart is crushed. My spirit shattered. My body physically hurts from the inside out. I am angry and scared. Dorian is angry and frustrated. But he is ready to fight. He is ready to kick ass again. He is ready to survive!!! Together, we stay D-STRONG!!!!!!
-Melissa will be spending every moment she can with her child. Trying to cherish every moment! I believe this ride is going to be more difficult than ever and they need our help. Please help me to raise money to help her keep up with their living expenses and make some great memories for her and D!