Prayers, Support, Healing, & Blessings For Maddie

http://paypal.me/maddiestrong2020 20 As many of you know my name is Chelle. This has to be the most roughest and difficult time for the world due to COVID 19. For me, it feels like my entire world has ended with pain and heartache for my little girl. I recently found out on the March 23rd that my 5 year old daughter Mada’Syn ( Maddie) was diagnosed with Embryonal Rhabdomyosarcoma which is a type of CANCER. It’s very rare and not many know anything about it.
Educating yourself is always good. As a mom, we know when something isn’t right when it comes to our kids. Her symptoms were vomiting all day from foods, medicines, limping to the point she no longer was able to walk anymore, sleeping all day without wanting to get up, very weak, high fevers, and constantly crying about stomach pains. During all of this, I was taking her every day to the Pediatric Clinic. With me
explaining all of her symptoms they thought it was a virus. Medicine was prescribed, but it didn’t stay down for long. Upon appointments, they mentioned that her weight has been the same since August. You would think that would have been a red flag to the doctors we seen; however, it wasn’t. Only I knew something was wrong. I did get a second opinion with taking her to the hospital. After test and blood work, they suspected she had a disease in her bones so we were rushed immediately out of town where
they were able to do plenty of test including MRI, CT Scan, and plenty of blood work. They did confirm with me what they found on images. They did try removing the tumor on the 20th of March; however, the mass is extremely big that it's wrapped around her main artery and they didn’t want to risk losing her. They were able to place a port in her chest and do a bone marrow as well as a biopsy. Over the time period of waiting for doctors to get back to us her stomach began to swell so I had to step out on faith and drive here to Memphis, Tennessee on Saturday, March 28th. Due to this virus her siblings were unable to come with us. We have been separated all for sometime now. We are located at St. Jude here in Memphis because this is the only place where radiation can be done.  We had aPET SCAN completed which is a positron emission tomography scan that helps reveal how your tissues and organs
are functioning. A PET SCAN uses a radioactive drug (tracer) to show this activity. This scan can
sometimes detect disease before it shows up on other imaging tests. I just got more news that she is high risk which puts her as STAGE 4. We just started her chemo treatment on April 1st. Her treatment time is a year and a half as of now. Radiation will start at some point during her treatment once the doctors decide when. We will have to travel between Lake Charles, Baton Rouge, and Memphis over the next year and a half. The goal is to shrink the tumor as much as possible and then perform surgery to remove
it. My fingers are crossed. Right now, she’s scared , afraid, and have bad anxiety. Her blood pressure has been very high all of sudden since we found out about the cancer which isn’t good for a kid that’s 5. She’s on meds for that also. Maddie still has an entire life ahead of her with so many people supporting her through this. We’re on this journey alone due to the virus which is extremely hard for me. I am single mother of 4 and her siblings are in the best care possible as of right now. She misses
her only brother Bry (1 years old), her older sister Lon'Dynn (6 years old), and her oldest sister Nira (13 years old). She also misses her other family who she can only talk to via facetime as well. Being that we’re from Louisiana which has one of the highest numbers for COVID, we have to be isolated for 14 days. It’s only her and I on this journey together and been that way since the 18th . We haven’t seen anyone for a while now and I know
one day it will be a lot better. I was able to make my job aware of my daughter’s illness and me not being able to work. As stated to me I can have FMLA for 12 weeks without pay since we don’t get any PTO, I can’t use any short/long term disability since I’m not the patient, and of course they told me once my 12 weeks are up they will have to terminate me. This isn’t ok but I don’t feel it’s much I can do. I’m a
very private person and didn’t even want to make this gofundme; but I know Maddie and I will need lots of help and support from all. I’m highly grateful for anything you would like to support us with including prayers. I need lots of it. You can email me if you like. I’ll do my best to respond when I can. Take care and thanks for everything!