As most of you know, sweet little Ellie has been battling surgeries, being poked and prodded, going to constant therapy sessions and appointments since near birth while the doctors try to narrow down exactly what it is that she’s dealing with; which they now know is Hydrocephalus. She had a shunt placed in her brain to relieve the extra fluid causing swelling and pressure. Over the course of the last two years the shunt has proven to work, but also has under worked and over worked at different times causing Ellie to have severe symptoms along the way, and always ending in a trip down to Children’s Hospital. When the symptoms reached an all time high last week, Leah and Wade knew something was seriously wrong and rushed her down to Childrens immediately. There they found that her cranial pressure was fluctuating anywhere between the 60’s all the way to 120, whereas a normal person has a number of around 5-15. It’s a miracle Elle is ok, but the doctors say because this pressure has been building over time, her body has adjusted. These numbers are the highest any one of her doctors has ever seen.
Finally, today, (Aug. 14) Ellie will be receiving her very big, scary and much needed surgery where the neurosurgeon and plastic surgeon will work together to expand her skull in hopes of reducing her overall cranial pressure. Please pray for strength and healing for Ellie!
We know that like us, there are many people who LOVE & SUPPORT Wade & Leah, and are wanting to do something for their family. We'd like to approach this as a opportunity for them to receive blessings from their community, whether it be money to get ready made dinners, gas assistance as they drive back & forth to Seattle Childrens Hospital, a simple cup of coffee, special things for Ellie, a family date once Ellie is recovered to celebrate, medical bills, hotel stays, its endless.
Leah and Wade are two of the most genuine, caring and loving people on this planet and would NEVER ask for anything, even from their very best friends! They are amazing parents who dedicate all their time and energy on their four kids, all who are four and under! We can't even begin to imagine what they are going through. We know many of you have watched their story from afar and have been asking for ways to help. So, we thank you for your generosity and eagerness to give, and encourage you to please continue praying for Ellie :)
Here’s the most recent post from Leah on August 13th:
SURGERY IS TOMORROW AT 11AM!! It’s such an answer to prayer that they were able to schedule it so fast. I’ve learned that Cranio Vault Expansions are not usually an emergent surgery and are scheduled with a lot of coordination and planning. With Elle needing one so urgently they’ve been scrambling to put together the perfect team of doctors- it’s a very big and very severe surgery and they want the best of the best. And her neurosurgeon is confident she has the perfect team for tomorrow. They are planning on her loosing a lot of blood so they’ll start her on a blood transfusion as soon as she’s under anesthesia. Then her neurosurgeon will make an incision from ear to ear and then cut open her skull and cut out pieces and then the plastic surgeon will piece it all together in a way that makes more room for her growing brain. It’s obviously terrifying but I am counting down the hours til my baby girl gets the help she needs. Her ICU team said she wins the award for the highest cranial pressure they’ve ever seen and honestly I feel like it’s a miracle she’s alive and conscious with pressures in the 100s.
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