Hello, I'm Ashley. My son is Nolan, and today our world changed in an instant. My son suffered a brain AVM rupture while at school during PE. He suddenly became very sick, threw up, passed out, and has been unresponsive ever since.

He is currently in the ICU on life support, fighting for his life. The first 48 hours are critical, but by the grace of God, he made it through his first emergency surgery, where doctors placed a brain tube to relieve the dangerous pressure on his brain.

Right now, he is still facing serious complications and has been struggling to keep his heart rate stable. Once he is strong enough, doctors will begin further testing to determine what treatment options are possible. The AVM is very deep in the brain, making treatment extremely complex.

We are praying for a miracle and holding onto hope every second.

As his parent, I cannot leave his side during this fight. Because of that, I will be unable to work for the foreseeable future. I am asking for help to cover our monthly living expenses, bills, food, gas, and necessities so I can stay where I need to be, beside my son.

If you are unable to donate, please share this page and keep my son in your prayers. Every donation, prayer, and share means more than words can express during this devastating time.

Thank you from the bottom of our hearts

UPDATE-----

It’s hard to believe how much has happened since Nolan’s AVM ruptured on April 27th.

For those who may not know his story, Nolan was only 11 years old when his AVM ruptured unexpectedly at school, causing a catastrophic brain hemorrhage. He was rushed by helicopter to Orlando, underwent emergency brain surgery, spent weeks in the hospital, and then continued his fight through inpatient rehabilitation.

He has come so incredibly far, but our journey is far from over.

Nolan is finally home, but he still has significant disabilities from the brain injury. He has severe short-term memory problems, very limited control of his left side, and struggles with his neck and core strength. He requires extensive assistance throughout the day and continues to need PT, OT, and speech therapy to help him regain as much independence as possible.

We also recently had another terrifying setback. Nolan began having seizures and had to be life-flighted back to Orlando. His doctors are concerned that he may be experiencing subclinical seizures, and his medications have had to be adjusted. He is now taking Keppra and Depakote along with his other medications, and we are continuing to closely monitor him.

His skull reconstruction surgery was also completed on July 14th, and thankfully he made it through that surgery well.

We are now looking ahead to September, when Nolan is scheduled to have another angiogram in Miami with Dr. Abla. This will help determine whether his AVM can potentially be surgically removed. If surgery isn't possible, radiation may be considered, which comes with its own risks and uncertainties. As a family, we are praying that we finally get some answers and a path forward.

Nolan has appointments in Orlando and Jacksonville, along with therapy in Jacksonville five days a week. I am his full-time caregiver and unfortunately cannot return to work because he needs me with him around the clock.

The support we have received has helped us tremendously with therapy, transportation, medical equipment and supplies, medications, care, travel, and the many unexpected expenses that have come with this journey. Every donation, no matter the amount, has made a difference for Nolan.

And if you aren't able to donate, sharing his GoFundMe is just as meaningful to us. Every share helps us reach someone who may be able to help.

Thank you to everyone who has prayed for Nolan, donated, shared his story, checked on us, or simply continued to believe in him. ❤️

He has fought incredibly hard to get here, and we aren't giving up on him now.

Please continue to pray for Nolan as we head toward his September angiogram and whatever comes next. ❤️