In the coming week, Megan and Cameron will be welcoming their baby girl into the world, and with their permission, I want to share part of the journey they’ve been walking through.

After her 20-week anatomy scan, she was referred to Wilmington Maternal Fetal Medicine, where doctors discovered several birth defects. This news was devastating and unexpected. At that time, they suspected a genetic syndrome but could not give clear answers without further testing. After several days of prayer and thoughtful consideration, she and Cameron chose to move forward with genetic testing so they could better understand what their daughter might face after birth.

On October 31st, a specialist from Duke performed a detailed echocardiogram. Their prayers were answered that day — her heart was found to be healthy, and her organs were functioning normally. Shortly after, they received the genetic test results, confirming that their baby girl has Pfeiffer syndrome, a rare genetic condition caused by a spontaneous gene change during fertilization.

They were then referred to Chapel Hill for further care and confirmation, where an MRI revealed that their daughter has Type 2 Pfeiffer syndrome. This condition is extremely rare, affecting roughly 1 in 100,000 births, and each case presents differently. Because of that, the uncertainty and unknowns have weighed heavily on this family.

Pfeiffer syndrome causes the bones of the skull to fuse too early during development, a condition known as craniosynostosis. After birth, surgery is typically required to allow the brain room to grow. Their baby’s skull has a cloverleaf shape, which can affect facial development and brain growth. Babies with Type 2 Pfeiffer syndrome often experience airway complications and may require breathing support after delivery.

The last few months have been incredibly difficult — no parent is ever prepared to hear news like this. Through it all, they have leaned on their faith, trusting God to carry them through each day, even when some days feel heavier than others.

Doctors believe a C-section will be the safest delivery option, and it is scheduled for January 27th at Chapel Hill. Their baby will be closely monitored in the NICU, and depending on her needs, surgeries may be required early on. The length of their stay is unknown, but they have a dedicated medical team prepared for her arrival.

This family has shown remarkable strength, faith, and love through every step of this journey. They are trusting God’s plan, praying for the best possible outcome, and believing that His glory will be revealed through their precious baby girl.

If you are able, please keep Cameron, megan, their baby, and the medical team at Chapel Hill in your thoughts and prayers. Any support — whether through prayer, sharing this page, or donating — means more than words can express