Change life (health) for people with Prader-Willi Syndrome
Prader-Willi Syndrome is not well known but afflicts 1 in 15,000 people and their whole family. At birth, babies have floppy muscles so that they can't feed and may need support to breathe. Some need tube feeding for more than a year. Every day they need therapy, hard work and injections to help them get strong enough to feed, hold up their heads, grab, sit up, crawl, stand, walk. Things we take for granted.
Between 2 and 8, they develop an insatiable appetite despite only needing 60% of calories. Imagine always feeling starving, no matter how much you eat. People with PWS can binge eat to death in a single episode, especially as they have a high pain threshold and rarely vomit.
They suffer from numerous medical complications - prone to mental illness and psychosis, meltdowns and rages, scoliosis, sleep apnea, respiratory issues, anxiety, cognitive impairment, autism, infertility, obesity and all of its related issues. People with PWS need supervision of their food-seeking all their lives.
Please help fund a Clinical Fellow to provide care for people with PWS and to do research into life-changing treatments.