Meet miss Kensley Taylor. She is our beautiful 1 year old baby girl. When Kensley was a week old we noticed her pupil was a little different. So as terrified parents we brought her straight to the doctor... Whom took one look at her and called a very incredible ophthalmologist who got us in the next day to be checked. We were so afraid. When we saw the doctor he diagnosed Kensley with an atypical coloboma of the right eye and said we will follow up once every few months to see how she sees and if everything is growing as it should. So when Kensley was 3 months old we seen the ophthalmologist again who told us he would like us to see a retinal specialist in Detroit (3 hours away from our home). So on an incredibly snowy michigan day we traveled to Detroit to see the specialist. When he looked at Kensley he asked immediately if we had a history of colon problems in the family... And since we do... Our hearts sunk. Kensley was then asked to be seen a week later back in Detroit to put her under anesthesia and get a closer look into her eyes and take labs for genetics testing. We learned then that Kensley has CHRPE. (Congenital hypertrophy of the retinal pigmented epithelium) also known as "bear tracks" CHRPE can be found in people with Gardeners syndrome and FAP (Familial Adenomatous Polyposis) which is an autosomal-dominant inherited condition characterized by the development of several intestinal polyps, which can lead to colorectal cancer if left untreated. Since she has no other symptoms associated with gardens syndrome at this time it has been ruled out. But with the family history of colon cancer and problems we would need Kensley to go through cancer genetics testing. Since we have been since told our insurance wouldn't cover the testing we came to here for help. We have heard that people with CHRPE that is associated with FAP have a high chance of developing colorectal cancer anywhere from there 20's and up. If Kensley has the gene she will be able to be referred to a gastroenterologist and be screened regularly to ensure we catch it in time to be corrected. The atypical coloboma at this point is not related and is as far as we know now, cosmetic. But it was a God sent gift she was born with it... Without it we would have never found the CHRPE in her eyes, and could have never known until it was too late.

For over a year now we have seen genetics doctors, specialists and multiple opthamologists and still we don't feel like we have the answers we need. This is the next step that we need. we appreciate you taking the time to read this, and for any help you can give. Thanks in advance.