Pound the pavement for Patrick & Cystic Fibrosis

Do you want to join me in making a difference? I'm raising money in aid of Cystic Fibrosis New South Wales and every donation will help.

 

In September last year Shae and Matt welcomed beautiful twin boys into the world, Adam and Patrick.

 

After a few weeks Patrick wasn’t putting on weight and after several tests and a trip to John Hunter Hospital it was discovered that Patrick has Cystic Fibrosis. Cystic Fibrosis (CF) is an inherited life-threatening disease that damages the lungs and digestive system.

 

CF is the most common life limiting genetic disorder affecting Australians today for which there is no cure.

 

Cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts and passageways. This causes impairment of the digestive functions of the pancreas and traps bacteria in the lungs resulting in recurrent infections, leading to irreversible damage including Lung failure.

 

From birth, a person with CF undergoes constant medical treatments and physiotherapy.

 

One in every 2,500 births produces a child who has CF. A baby is born with CF every four days.

 

The life expectancy for people with CF is 38 years of age.

 

We couldn’t accept the fact that our friends child could have such a short life expectancy, and whilst we can’t change the world, a group of Shae and Matt’s friends got together and decided we would do something to raise some money, every little bit helps towards research and hopefully one day, a cure. Fundraising can be hard for CF because CF can’t be in the same room as others with CF as the risk of passing infection back and forth to each other is too high.

 

So on 26 March we will be walking 38km (we chose that number as 38 is the life expectancy) around the Central Coast, starting at Kincumber, walking to Green Point, Gosford, over to Woy Woy then back to Kincumber via Empure Bay. We expect this to take about 9 hours.

 

Thank you in advance for your contribution to this cause that means so much to me. Be like Patrick and stay positive that one day there’ll be a cure!

 

More information about Cystic Fibrosis New South Wales: Our mission is to promote awareness of CF, provide support, advocacy and information to the CF community, and fund medical research into the fight against CF