My name is Kasey Garner. My nephew Blaidyn was born on August 17th 2015 with a rare genetic disorder called Jeunes Syndrome aka Asphyxiating Thoracic Dystrophy.  Jeunes syndrome is a rare condition that primarily affects the bones. A common side effect of the disorder that is majorly affecting Blaidyn, is short ribs which restrict the growth and expansion of his lungs. This causes major breathing difficulties and Blaidyn has been on oxygen since he was born.  He has been hospitalized the majority of his life so far. He tires out while feeding because of the decreased oxygen and will now have a feeding tube put in because of the continuous weight loss. Blaidyn will need a very unique surgery called the vecptor placement. This will require expanders be placed in his ribs to increase lung expansion. The only Dr. that will perform this surgery is in Philidelphia, Pennsylvania. The first preop appointment is scheduled for the end of January. Insurance will pay for travel for Blaidyn but that is it. My sister Shawnda will be required to pay for her own travel, hotel, and food expenses. After the preop appointment they will return for surgery and have to stay until he is released. Along with the surgery, Blaidyn will have to return to Philidelphia every 6 months after the surgery until further notice to have the vecptor expanders lengthened. With Blaidyns medical condition and him being in and out of the hospital, Shawnda has had to quit her job and focus on taking care of her baby. This surgery is very important for Blaidyn to be able to grow and have as normal of a life as possible. We are making this account to help with travel, hotel, and meal expenses the family will have throughout their journey. We appreciate any donations small or large and thank you all for reading this. Please keep baby Blaidyn in your throughts and prayers.