
Dad's Brain Cancer Fund
This is my dad , Leonard Studley. Up until 6 months ago he was living a normal active life as a 72 year old man who loved to walk his "grandog" and watching his grandson play baseball. He also worked part time cutting deli meat, which he thoroughly enjoyed. Talking to all the customers and being the "cheeseman" to all the kids. He and his wife liked to take long rides and enjoy the sites. They never had money to travel but the rides to the Jersey shore were enough for them.
On January 30th dad was working cutting lunch meat and he looked down at the pile of meat he had just finished cutting and it looked like a pile of trash moving to him. He thought it was weird and tried to continue his shift but continued to see odd things and felt dizzy. The next day he called me at 6 am and said i had to take him to the hospital as he was seeing things moving, birds that weren't there and flowers on the walls. I proceeded to pick him up and drive him to the ER . On the way there he almost caused me to have an accident as he thought a telephone pole fell in front of my car. We were in that ER all day where they performed blood tests, EEG, Spinal tap, Xrays and finally MRI of the brain. they kept him overnight. On January 31st (the next day) he was complained of ectreme pressure behind his eyes. They actually thought he may have an extreme sinus infection. Unfortunately this was not the case. Later that morning the neurologist came in to tell us they found a golf ball size tumor in his right frontal lobe. They transferred him that day from local hospital to University of Pennslyvania hospital in Philadelphia(about 46 miles from us). More tests were performed and they diagnosed it as Stage 4 glioblastoma. Dad was in the hospital this time for 3 days . We then met with neurosurgeon and dad was scheduled for brain surgery to remove tumor on January 29th. He had 9 hour long surgery where they told us they removed 95 % of the tumor but there were many pieces wrapped around ventricles that could not be compromised. Dad was hospitalized 8 days and then sent home to recooperate and start agressive chemo and radiation treatments. He only made it through 9 treatments and then on St Patrick's day in the evening he got up and told my mom she was keeping him hostage and destroyed the bedroom saying it was not his home. Dad hasn't come back completely yet. We took him to Doylestown hospital (where he was recieving his treatments ) where he became increasingly confused and hallucinating actively again. He spent 7 days there on one to one care as his safety was compromised. He was then transferred to University of Penn where he spent the next 42 days in delirium and confusion. Hallucinating , being restrained as he was so confused and fighting everyone as all he wanted was to go home. Dad has not come home after all that hospital time they decided there was nothing else they could do for him as he was not tolerating the treatments and had suffered necrosis in brain from radiation. We would travel every day an hour and a half eachway every day to be with him and try to make him feel safe . (it is only my mother, who is 70 and myself.)I used all my vacation, sick and personal time up at work very quickly it seemed. Dad was placed in a nursing home in Doylestown pa , which is half hour each way from us. He wants to be home and unfortunatley due to his mental state my mother cannot do it and because they have no savings and always lived check to check sadly, cannot afford home health care. He is so sad depressed scared. Dad did everything. And i mean EVERYTHING! I had to go through all their paperwork and try to figure out all their bills as unfortunately dad was struggling with symptoms throughout December but didn't want to ruin the holidays . .I had to try to figure it all out and take money from my savings account (which is now depleted completely) to keep their bills up to date. (sorta) Now that dad is not working his little part time job all their bills seem to have piled up quickly. We applied for medical assistance for dad , who worked his whole life, served his country in the Army , and we were denied.
I have a folder of medical bills that his medicare and AARP did not pick up and threatening letters and phone calls for the balances. I try to send them each a little something every month to prove making an attempt but the little bit i send every month is gone--I have not an extra dime any more. Their bills are piling up. I am trying to work with companies and making arrangements but it has gotten bigger than me and out of my control. I don't know what else to do or where to go. We have an extremely small family and unfortunately we all live check to check and don't have savings to fall back on.
My dad is a proud man always has been. Would help anyone however he could and I don't want his name to be damaged so bad and for all this debt to be left to my mother who is getting increasingly weaker with diabetes, stress and definately depression as this has happened so quickly to us. It has been 5 months since dad was diagnosed and life has been a whirlwind. I would not wish this horrible disease to anyone. Gliobalstoma is extremy aggresive ,fast moving and devastating. Dad only has 35 more days that will be covered in the nursing home by Medicare and then if we cannot get him approved for any assistance will need to come home and we will need to provide some kind of nursing to keep him comfortable as his inevitable demise will come. He was given 6 weeks to 3 months to live .. 36 days ago.
It would mean the world to me to clean up the mess of bills that have accumulated and to be able to have someone to help us take care of him as the end approaches and keep him comfortable and to die with some pride as he always has had , even with the little bit we had.
I can thank you in advance enough for any help you can provide to my and my parents at this extremely difficult time.
Update: Today is July 11th and dad is home on hospice. He has a ton of anxiety about what is going on with him and is trying hard to comprehend it all. He is happy to be home and seems to find some comfort in this. Dad likes to feed and watch the birds everyday. He is slowly declining and kinda "shuffles" as he walks but definately still likes to attempt to go for lil walks. He is starting to have hallucinations again as well . Dad is quite confused sometimes and it is so hard to watch and helping him without embarrasing him. He is sleeping much more. Dad and I talked just last night and he said to me "I wish i would have a heart attack and die, I have had them and I can handle that. I don't know what to expect with this cancer thing and I'm so scared ". It is truly heart wrenching and makes me feel so helpless :(The hospice team is amazing and are helping us to understand and deal with exactly what is going on . Couldn't ask for a better team . We are grateful for the money that has been donated and have put a dent in our forever growing pile of medical bills . We are now trying to figure out how we are gonna paythe rest of these bills and his funeral costs and are hoping to raise enough here to cover this. I can't thank you all enough for taking the time to read this and for your extreme generousity. Please keep praying.
TREASURE EVERY MOMENT!!!!!!!