Can you help me please to raise funding for rare cancer treatment I desperately need as the NHS have declined funding for me to live, and time is running out.

Thank you x

My name is Chanelle.

I have been diagnosed with a very rare cancer and need your help.

I am so extremely hopeful and wanting for life, but time is against me, and I thank you with all my heart if you could help me raise funding for private cancer treatment to keep me alive.

I am currently on treatment which is a chemotherapy drug called Paclitaxel, a targeted cancer drug called Bevacizumab which is also known as Avastin and then hopefully an immunotherapy drug called Pembrolizumab also known as Keytruda.

However I was hit with the blow that the NHS will not fund this treatment.

My oncologist applied for additional funding for the rarity of my case but the NHS rejected the application and will not fund my treatment.

I was hopeful that the NHS would accept the additional funding request as the Government has now passed the Rare Cancers Bill which is now the Rare Cancers Act 2026 which ensures patients to have arrangements in place by medical professionals who are researching into their rare cancer type. This enables patients to have access to clinical trials and access to treatments which are for rare cancers.

Therefore I was shocked and devastated when I was told the NHS has rejected this funding application.

Leaving me with no choice but to go private to pay to save my own life.

So far, it has cost me £10,724 for one month’s worth of treatment for the Paclitaxel and Avastin to be administered to me at a private hospital.

The two drugs I need are being given to me in the hope that this stabilises my liver and if this is successful, there is hopefully the option of having the immunotherapy drug Pembrolizumab (Keytruda).

If I was to have the immunotherapy drug too if my liver stabilises, the immunotherapy drug Pembrolizumab (Keytruda) costs £7,630 per cycle.

Please read on if you wish to continue reading my story ......

In September 2024 I was faced with the devastating diagnosis of Ovarian Cancer at the age of 30. I was in complete shock and my whole world turned upside down.

It started in June 2024 when I was in the gym as I had an active lifestyle and the gym would be my second home. I started getting really bad abdominal and chest pains when I stopped for a rest during my workout as I didn’t feel too well, they got worse and I ended up being taken via the Ambulance to A&E.

I was treated for what they thought was fluid build-up in my abdomen. I was not told of any sign of cancer and I thought it was just a straight forward process of keyhole surgery to drain the fluid which is what the surgeon carried out.

Following this I went back to work as I felt better but 6 weeks later in August 2024 the pain started happening again. I was taken via the Ambulance back to A&E and was informed that this fluid build-up had re-collected but they could not operate as it was only 6 weeks after the first operation and therefore too soon.

I was put on antibiotics to see if this would get rid of the fluid build-up.

Having finished the 3 weeks course of antibiotics the pain came back. I was taken via the Ambulance back to A&E. This was September 2024.

The surgeon said that the fluid had not gone away and the antibiotics were keeping the fluid at bay and when I had come off of the antibiotics that was why the pain had started again as the antibiotics were only halting things. He then went onto say it was unusual for the fluid to recur this many times and they needed to do a bigger operation. They did a midline incision down my abdomen and removed my right ovary and right fallopian tube.

I then scheduled a meeting with my surgeon weeks afterwards as I had given myself some chance to recover but I still felt “off” and unwell and as I wanted to feel safe, as something was still paining and I was not sure if it was recovery pains or not.

My surgeon must have seen that I had booked the appointment when he had found out so he must have thought he would tell me then. I had no idea. However when I sat in the appointment he asked me about my pain and I started talking about it and asking him questions and he said he would get back to it.

My surgeon then said to me “I have some difficult news, you have got cancer”. Right then my world stopped. My whole body went numb and I could not believe what I was hearing. He told me I had Ovarian Cancer and that I needed to go for a full hysterectomy and chemotherapy as soon as possible.

In October 2024 I underwent major surgery having now my third surgery which was a full hysterectomy. Following this I had several complications including sepsis and nearly going into intensive care. I was told during this time that not only did I have Ovarian Cancer, but I had a rare subtype, so rare that there is no one else known in the UK who has it. It is called Adenosquamous Ovarian Cancer.

In January 2025 to April 2025 I underwent chemotherapy with the aim of clearing all microscopic cancer cells. In May 2025 I received the best news that I was cancer free and the scan was all clear.

I went back to the gym building my strength back up and adjusting back to a new normal life with the hope of going back to work soon after.

However in November 2025 I received the devastating news that the cancer had returned.

It had metastasized to my liver and pelvic region. I was inoperable due to how many tumours there are on my liver and they were only able to do chemotherapy.

In December 2025 I underwent two months of chemotherapy and I was told that it had not worked. They said that they had no further options for me at the hospital I was at. I had never been so scared in my entire life. My whole body went into panic. I do not want to die.

I got told that I would now be considered for clinical trials and I was referred to two different hospitals. Both hospitals at the time did not have any trials for me at that moment. I just had to wait in the unknown which made me so scared.

I then after over a year of researching since my diagnosis found a research paper of a lady in Hong Kong who had the same subtype of cancer as me - Adenosquamous Ovarian Cancer. I told my oncologist about the treatment she had been on which led to further options for me to try which the oncologists had agreed on.

I am now on treatment mentioned previously which is the Paclitaxel and Bevacizumab (Avastin) and then will hopefully be put on Pembrolizumab (Keytruda) if my liver stabilises. So this is why the funding I have mentioned at the beginning is desperately needed.

My oncologist has told me I am in a serious situation and that my prognosis if treatment does not work is less than 12 months, even possibly shorter as my liver needs to be stabilised for me to even have a chance for the immunotherapy drug to be safely administered.

Therefore for me to be able to have the best chance of surviving, as my liver needs to stabilise, I need to keep having the treatment I am currently on in the hope it works and stabilises my liver and I can start to get better with the hope that the immunotherapy or the treatment I am on now shrinks my tumours and I can start to live my life again. I would then be placed on a maintenance drug and hope this works to enable me to have a long life.

I am so extremely hopeful and wanting for life and I would appreciate if anyone reading this could help and donate any amount they can to help me achieve this and to survive, as all I want to do is get my life back and go back to work and do those normal things that I so wish I could do right now. If anyone could help me I would appreciate it with all my heart as I just want to live.

Any money that is not used for treatment in the worst case scenario or I no longer needed treatment anymore then the rest of the proceedings would be donated 50/50 to Cancer Research UK and Ovarian Cancer Action.

Thank you for reading and I will be updating you on my progress. Thank you with all my heart for your help, I truly appreciate it ❤️