Please Help Us Save Baby Alex

Dear Friends!  Thank you for coming to our page and for your time to learn about our story. We are asking you to help a little human being to breathe and a chance at a normal life. We are hoping to gather funds for an incredibly rare medicine for our 2 months old son. Even if you cannot help financially, we would really appreciate if you could spread the word & share this information with your network. Alex was born a healthy baby and the first month we were beyond overjoyed to welcome him to our lives. Soon we noticed that he is not moving hands or legs and can't hold up his head. The DNA tests confirmed the worst, he has Type 1 Spinal Muscular Atrophy (SMA) - a genetic disease that does not let muscles to develop properly, which means that eventually he will suffocate because his muscles will not be able to contract. Doctors gave us 9 months. Up until 3 years ago there was no cure, but now there is a drug, Spinraza, which significantly slows down the progression of this horrible disease. In Canada and in Europe the babes are given shots almost immediately after the diagnosis, but in Russia, where we live - it has only been approved in Aug 2019 & simply not available through government programmes till at least Feb 2020. Our world has crumbled. How can we find $600,000 (CAD) in time to save our baby Alex before disease would wreck total havoc with his fragile body & before Russian government would be able to help. Each shot costs $150,000 (CAD) and first course consists of 4 shots.  With a lot of hard work, support & charity from our network we were able to find access to the drug in Russia, medical facility that was able to administer the medicine, equipment to help Alex with breathing and raise almost the entire sum which covers completely the first 3 shots. At the moment of this posting we were able to raise $550,000 (CAD) through crowdfunding & are really close to have the complete amount for the final shot.  Alex has already received first shot of Spinraza on Dec 12th. The next 3 are scheduled for Dec 26th, Jan 9th & Feb 13th. It is a true miracle before Christmas & we were able to accomplish a lot within the first month after the terrible news but now asking for help from international community. We are actively continue fundraising efforts in Russia as well. We simply cannot deny our little angel a chance at life. Thank your for your time & for reading our story. We would be forever grateful for any help you can give..   Hope your family is healthy and safe this Holiday Season! God Bless! With deepest thank you! Mom & Dad of Alex,  Yulia & Artyom Gulyants Disclaimer:  I'm Alex's aunt, Elena & organizer of this Go Fund Me Fundraiser for my dear nephew Alex. I live in Toronto, Canada  & will be transferring funds directly to Alex's parents in Russia. Please reach out to me if you have any questions.  To reach Alex's parents directly:  Artyom -[email redacted] FB Group (we are working on translation &  post progress for our little baby & fundraising efforts updates): https://www.facebook.com/groups/744086709406426/about/ Our family works with the following organizations in Russia:  Charitable Fund: Crimson Sails - http://bfap.ru/ |Fund for Families living with SMA: https://f-sma.ru/fund/contact/ Please note that GoFundMe only accepts payments from specific countries (Russia is not included) & the funds will be converted to Canadian currency. More on International Donations here:  https://support.gofundme.com/hc/en-us/articles/203604354-International-Donations