Please Help Trishanna Battle Rare Disease

Dear Friends,
     My daughterTrishanna has been suffering from a rare disease called Hirschsprung's s disease that has recently spiraled out of control and she needs immediate treatment to save her life. She has been experiencing contant pain and headaches and dizziness and is rapidly losing weight from the inability to eat solid foods and body weakness and her colon no longer function properly.  We have visited many hospitals but they have had little knowledge of how to treat her condition and have had zero luck or progress. 
We plan to take her to Cincinnati Children's Hospital Colorectal Center that has a major program for Hirschsprung's disease and excellent specialists for her condition, including post-treatment aftercare and a great bowel management program, to treat Trishanna can live a normal life.
We need help paying for expenses to get treatment in this hospital because her insurance does not cover for costs out of state.
Any help that you give can help us pay for many trips, tests, stays and possible surgery, and treatment to help her will be greatly appreciated. She needs to get there as soon as possible for she is getting sicker and sicker. 
Any amount you can give we will be extremely grateful.
Please help save my daughter. 
We will make sure we keep you posted with updates on her treatment.
Our journey is long and we will have many challenges ahead, but we need to have the right treatment for healing.
Thank you so much for your support.