Please help Trinity!

My beautiful daughter Trinity has Williams Syndrome, hypertension, aortic stenosis, pulmonary stenosis, coronary artery stenosis, renal artery stenosis, SMA stenosis, celiac artery stenosis and more..she has struggled her entire life, was only supposed to live 6 months but thanks to God, stem cells and an amazing team of doctors, she made it and is now 10 years old!! Over the last year, Trinity's BP has been uncontrollable and the doctors have adjusted meds, added new meds, and she is now on MULTIPLE blood pressure medications and there are no more options for her medication wise and even with all the meds her BP is staying around 140/90.. sometimes higher! She has such a complex case that there are NO doctors here who are willing to touch her. I found a Williams Syndrome specialist who FINALLY called and wants Trinity to come see him and see what can be done for her. I've been waiting for this call since October! I'm so happy that we may finally be able to get some relief for my baby girl! Unfortunately, they just called yesterday and need her there in 9 days.. the hospital is 9-10 hours away and I've missed so much work due to her health issues recently and need to be able to pay for gas to make it there and back, as well as lodging until a room is available at the Ronald McDonald House, and food while we are there. I HATE asking for help, but this may be the only chance to get my baby the help that she needs and deserves! She is the strongest person I've EVER met.. but I see her little body getting tired and it breaks my heart! I completely understand if you can't help but please at least share this for my precious girl! EVERY little bit helps!! I have letters from the Dr showing that she will be seen there if anyone wants to see and know that this is real. Thanks in advance!

Donations

  • Cathy Bacilek 
    • $100 
    • 26 mos
  • Laurie Dyson 
    • $15 
    • 26 mos
  • Anonymous 
    • $10 
    • 26 mos
  • Tamara Walters 
    • $50 
    • 26 mos
  • Katie Grant 
    • $50 
    • 26 mos
See all

Organizer

Mandy Granger 
Organizer
Vista, CA
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