Hi everyone .. Just a update... I've created this page for Aadil's family,  however they are the only beneficiary, and Sabina Aadil's mum is a co- host. I've updated and rounded the amount to 10k to assist with additional costs they may incur, I'm sure there will be many. Check the latest post for update and celebrate with us the first milestone that we have reached together,  being the $3400 required for Aadils DNA mapping...

Thanks for your support love T xx

Below are messages from Sabina, Aadil's mum.

We have just been advised the next tests which the Neurologist said is for the genetics testing is not covered under medical rebate or discount which she said would be in our previous conversation...it's $3400 tests which obviously we can't afford as it's my hubby is the sole earner while I'm a full time carer of my little one... Along with 2 other kids 8 and 6. We are literally shattered as we won't be able to do the testing now. So we are back to square one..no answers no diagnosis which means no treatment... And we are really heartbroken...
WHY is this happening to us..

Here is the background to what brought me here today to ask for assistance.  I love my 10.5 month old son. His name is Aadil.

My son is a special needs baby. Born with clubfoot had multiple casts since he was born.
Born premature, so spent time in NICU. Then he had seizures since he was 2 months. Then diagnosed with Hypotonia, low muscle tone, floppy head, flat head, sleep apnea, feeding n swallowing issues.
Global developmental delay. Had a laser surgery to remove his lip, tongue n buccal ties. Tenotomy for his clubfoot. MRI, EEG. He can't crawl or walk yet. Has a dysfunctional gut. Vomitings getting worse. He sleeps only 4-5 hours in whole 24 hours. Very colicky n crying all the time. He sees number of Specialists.
A Neurologist, Respiratory specialist, Orthopaedic, Physio, Occupational therapy, speech therapy, dietitian, gastroenterologist, ENT specialist...

I feel like I failed as a Mum...  I cry most nights seeing my baby in pain...  And with this Covid things have been tough. My son will be seeing a genetic team soon to get Whole Exome Sequencing plus Mitochondrial tests to find a diagnosis. I'm scared for the unknown. Just have a heavy heart now for my son... I feel so helpless and wish I had answers for my son...  guess I needed some hugs. Feeling very down lately coz I just can't stand to see my little one struggling like this...