MPS1 Hurler Syndrome is a rare lysosomal disease with no known cure. It is characterized by skeletal abnormalities, cognitive impairment, heart disease, respiratory failure & reduced life expectancy.
My mother & father, along with the rest of my family & friends love me very much & are devastated with the news of my terminal illness. With this illness that I carry comes a lot of financial obligations including a bone marrow transplant, enzyme replacement therapy & chemotherapy. Not to mention months of being in the hospital with my parents unable to work while caring for me there.
With the help of the donations from our wonderful, caring & generous community my family will be at less of a hardship in maintaining the necessary bills to get us through this long difficult journey.
A big thank you in advance for all of your thoughts, prayers, donations & words of encouragement. We are truly blessed to know our community is so compassionate & kind. Thank you all!!
- Diana Gutierrez
- Edward McCarver
- bruce miller
- Salim Suleiman
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