Hi my name is Patrise. I am 38 and I am a mother to a 10 year old boy. I am a Registered General Nurse. My primary job was looking after adults with disabilities, a job which I thoroughly loved. I became extremely ill in June 2015 with no definite diagnosis or treatment plan. I was admitted to hospital and unable to work and take care of my son.
My symptoms include constant pain 24-hours-a-day, issues with mobility, little and no energy, flu-like symptoms, severe insomnia, night sweats, poor mobility, memory and concentration problems, sensitivity to noise, light and sound, anxiety and depression and skin problems. There are several other symptoms but these are just naming a few. I had been diagnosed with ME (Myalgic Encephalomyelitis) and Fybromyalgia. In March this year I developed new neurological symptoms. Doctors investigated MS as the cause but have ruled this out and they cannot give me any answer as to why I am experiencing these symptoms and give me a specific treatment plan.
Since getting sick my life has been turned upside down, I've gone from a person who was full of life to struggling to function with the basic daily activities. It has affected my son as I have been in and out of hospital and he has seen his Mom unwell over the years. I was unable to work for two years. I tried to return October last year but unfortunately I relapsed in March. My only income presently is social welfare support. I cannot afford the further investigations and treatment I need.
Having questioned the doctors and researched all of my symptoms I’ve been investigating a number of routes as to the cause of my illness. My goal is to try and get to the source of my ill health and receive the treatment I need. One of these avenues is that my illness could be Lyme's Disease but unfortunately Lyme testing is expensive and I simply cannot afford it at present. I need to ensure I get on the right treatment plan other wise my health will continue to deteriorate.
I wish to say that I’m deeply grateful for all the support I have received to date. Its been overwhelming to know there is such support for me. However since beginning my journey, my health has deteriorated so much that I have been advised not to travel to Cyprus and now must pursue treatment options in Ireland. This decision has not been made lightly as I know people have contributed a significant amount to my Gofundme. If anyone would like a refund or have issues with this please do contact me directly. I appreciate from the bottom of my heart the support I have received.
I’ve outlined some of the areas which this funding will go towards:
– Seeing a private consultant in Ireland who tests and treats infectious diseases including Lyme's Disease. The initial consultation with this doctor is €400 with follow up appointments at €250 each. He requests that private blood test are supplied in order to assess what type of infection I have. He is the only doctor in Ireland treating Lyme disease and can only be seen privately.
– Blood work to be taken and analysed by a lab in Germany. These tests will determine what I’ve may be infected with. These tests can vary up to €800 depending on the severity of symptoms. More information can be sourced here at arminlabs.de. These blood test will be used by the private consultant to assess the best course of treatment.
– Using complimentary treatments such as biomagnetic pair and herbal therapy to help with symptoms I am experiencing and boost my immune system. These therapies have been proven to work alongside medical & pharmaceutical interventions.
Thank you for taking the time to read this and for your support
- Emma Hoey
- Aileen Trant
- Helen Murphy
- Silvia Masterson
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