In November 2021 our family received the worst news we possibly could have. Our wonderful, playful, cheeky son Conor was diagnosed with an inoperable brain tumour. He has gone from playing like a normal three year old boy does to now struggling to walk and talk. For the past few weeks we have made countless hospital trips in which Conor has undergone scans, blood tests and biopsies to see what we are dealing with and what treatment is available.
We were devastated to be told that he has a cluster of tumours which involves two different cancers simultaneously. The more aggressive cancer is DIPG. Diffuse intrinsic pontine glioma (DIPG) is a brain tumour that is highly aggressive and difficult to treat. It occurs in an area of the brainstem (the lowest, stem-like part of the brain) called the pons, which controls many of the body's most vital functions such as breathing, blood pressure, and heart rate which also means it is impossible to operate on.
The NHS have been incredible in providing fast answers and treatment as much as their capability's allow. We have however been told that there is nothing they can do and we are now to enjoy our time together as a family of four.
If you are a mother or father yourself, then you will know this is something we simply cannot accept without trying other treatment options first. We are currently in talks in Great Ormond St along with other treatment providers in an attempt to find treatment outside of the UK that can help our son. As parents we will do anything we possibly can to protect our children and make the best decisions we can for them. We will beg, borrow and steal to help look after them and give them everything they need. This is why we need your help.
Until now we have kept this journey to ourselves to allow us to process everything we have been told in such a short space of time. We are now sharing in the hope that you can help us raise enough money to fund the treatment Conor so desperately needs when we find this.
If the heart-breaking eventuality does happen that even outside of the NHS and UK we cannot find treatment for Conor, then we would like to make one last adventure with him and take him to Disneyland. We appreciate that not all of the funds we may be donated will be needed should we take him to Disneyland and if so we will put the funds into researching this condition so other family's do not have to go through the pain and nightmare we are currently living.
We know that Covid has hit people hard and you may not be able to donate. Even if it is a pound, it all adds up. If you cannot donate money then please give your time and share this page to help us.
Lastly, if you are reading this and we have not told you about this personally, please understand, our hearts are breaking and it is taking all of our energy to make sure Conor see's nothing but love, smiles and happiness from us. If we could message you all personally we would of course do so, as we know there are so many people who have so much love for our perfect little boy.