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Please help me to live for them

Mateusz Dziedzic is organizing this fundraiser.
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IN LIVE nothing is ever given to us once and for all. About this painful truth I found out few months ago. I am 40 years old. I have loving wife and wonderful children aged 8 and 6. I have been working in Polish uniformed services for about 16 years. In 2021 ,doctors have diagnosed me with SLA- amyotrophic lateral sclerosis. It stared innocently, a slight noticeable numbness of the leg which in the beginning I initially underestimated … thinking that will eventually will go away. With time, however, I felt that I am loosing my strength in my hands and my attitude began to change. There was nothing else to wait for, it was time to consult this with doctor. The diagnosis turned out to be devastating- I was affected by an extremely rare disease,  for which since diagnosis  the average life expectancy is from 2 to 5 years.
 It is a rapidly progressing, invariably deadly neurological disease that attacks nerve cells responsible for controlling voluntary muscles movements. A disease that causes that gradually all the muscles are damaged, and the patient loses strength and ability to move their arms, legs and body. When the muscles of the diaphragm and chest walls fail, the patient loses the ability to breathe, and he needs ventilation support. 
The disease causes disruption of the work of basic organs (esophagus, stomach), step by step it destroys the whole body, up to full mobility and motor functionality. At the same time, it should be mentioned that the patient is still fully aware of what is happening to him, but he can not make any movement. Its last stage is the involvement of cardiopulmonary muscles, which results in death.
Unfortunately, there is currently no cure for SLA. The only thing we can do is to slow down its development. For this, however, you need constant rehabilitation, care of medical staff undergoing innovative therapies.
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    Mateusz Dziedzic
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    Brooklyn, NY
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