
Please help me support my twins
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Hello .
I wanna start off by saying I never thought in a million years that I would have to do this but here we go … My name is Shukurah Johnson & I am the mother of two beautiful boys (twins) Ace & Avery. They are currently 8 years of age.
My son Ace was diagnosed with Tourette’s a few months ago that has been going as well as to be expected but recently he was diagnosed with PNES .. Psychogenic Nonepileptic Seizure. Sometimes my son has between 10-20 seizures daily. We have been in and out of many major hospitals looking for any type of answers and the most I’ve gotten was “there is no cure” “he has to go to therapy” and we are going once every week. My son has been out of school for going on 4 weeks now and he can’t even play outside with his peers because he will fall out into a seizure at any moment. I have not been able to work or even leave the home to grocery shop.. SERIOUSLY HE NEED TO BE WATCHED 24/7 … This is really hard on me and his brother because what we are going through in this home is unimaginable… I have videos to prove it. I have asked for help from the state I have tried to get SSI for him because I currently have no income and I am struggling BAD . All I am asking for is a little help PLEASE … I would love to buy them something for Christmas I would love to not have to take the BUS to get him to his appointments. I would LOVE to be able to pay my phone bill just for emergencies. I’m going through the works right now and I don’t know what to do so anything pleaseeee
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Shukurah Johnson
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Schenectady, NY