PLEASE HELP ME HEAL (stem cell transplant in NYC)
Donation protected
Hello everyone, my name is Kelly and I come to you in a very vunerable and humbled position to ask for help in my healing. I need a stem cell transplant and am FINALLY a candidate but had NO idea how much it was going to cost. I just knew it was something I strongly believe can help me.
I apologize that this is a long story however I want to be clear why I'd set this up with urgency due to my health for that much money for a goal.
I apologize that this is a long story however I want to be clear why I'd set this up with urgency due to my health for that much money for a goal.
I have had major health struggles most my life. In 2003 after being diagnosed with moderate to severe Crohn's Colitis Disease that after certain medications became medically refractory meaning no meds improved the condition. This left my awesome IBD specialist and I with few options and the one we both see getting best results with comparatively are the stem cells and a temporary ostomy bag.
I know I tend to share love or music because spreading love is my happy. What I dont share or show is how sick I actually am. I rather enjoy not "looking sick" to folks; I don't want to be identified through my sickness so I keep a lot to myself which is heavy to cope with on all levels. I doubt the internet wants to hear many times I vomited my meds up that day or how excruciatingly painful using the bathroom is and that I can't even finishing washing my hands without another abscess empty, it is all consuming. Now I have a recurring abscess that is horrendous but draining so I'm safe there..
THE ABSOLUTE WORST part is how I go in with all I have not to scream and cry going to the bathroom. the noises come flying out of my face before I can realize thats me being SO loud.
THE ABSOLUTE WORST part is how I go in with all I have not to scream and cry going to the bathroom. the noises come flying out of my face before I can realize thats me being SO loud.
Fact is after years I still need a 6pk of Ensure daily to maintain my weight after surviving wasting syndrome and continuing to fight it. I eat each meal while! drinking an Ensure with it. I fight to keep weight on which is so not my normal!!! I dont say hey this is stupid painful I am building muscle so when my body starts wasting it has some muscle to eat, but that's the case. I haven't told people the pain is so high its causing fainting, seizing hard and that was just from living with such pain that is at a max level.
I am an artist and singer who can't even speak without pain so I miss singing a ton. There is so much more I miss....
I am an artist and singer who can't even speak without pain so I miss singing a ton. There is so much more I miss....
Unfortunately my Crohn's Colitis Disease which is a rare form of Crohn's Disease I suffer about 75% of the colon being riddled with disease and ulcers ranging 2.5 to 3cm.
I have been on stronger pain medication since January and even that leaves me with a resting pain level of a 9/10 and spiking a lot to 10/10. I have a high pain tolerance so this is a bit scary. The pain makes me so incoherent nothing makes sense... I honestly don't know how many months since my pain was tolerable..
I have been on stronger pain medication since January and even that leaves me with a resting pain level of a 9/10 and spiking a lot to 10/10. I have a high pain tolerance so this is a bit scary. The pain makes me so incoherent nothing makes sense... I honestly don't know how many months since my pain was tolerable..
I am happy to share that after over a decade of wanting this stem cell transplant for some quality of life they added my illness to the trial!! I am hopefully going to start before summer!!! I have a strong belief in its ability to really improve lives- also I would be my own donor then they harvest it and inject the cleaned stem cells.
This treatment can help me in so many ways but I have obstacles. upon discharge from the hospital I'll be staying nearby at a discounted hotel for 4 weeks. The Drs need to see you for your daily check in 4 weeks solid every day before you can go home. I have called some places for hotel prices that have a discount and figured between my hotel, food and gas/cab money I really need help.
I did not want to even ask but I see this treatment as a huge opportunity to change my life for the better and all that is between me and healing is some money I will let ego go and ask that you share anything, any amount helps. It would be more than I have now and I should have a couple months to raise money. Even sharing the link would mean a lot. I NEED this transplant. I won't let anything keep me from it now, esp NOW!!!!!
Think the best part is that each donation you can see how instrumental you are in giving me a quality life after decades of suffering. Please help me get a life outside my bathroom if you can.. Beyond appreciate ANYTHING because as Tracey Chapman "Startin at zero got nothing to lose"
Sharing this is appreciated beyond measure. Let's get me a real quality life like I've NEVER known in 41yrs on this planet.
Sharing this is appreciated beyond measure. Let's get me a real quality life like I've NEVER known in 41yrs on this planet.
Organizer
Kelly Angel
Organizer
Tolland, CT