- M
I nearly died from covid over 2 years ago. I was in hospital for a month and thank G-d survived. I haven't had one good day, not a good half day, not even a good hour since then.
It is a very long time to be so sick. It's really hard to cope all this time.
I sincerely apologise for asking and I wouldn't if I wasn't suffering so much or if I had choices.
I have a huge number of problems and need to see a number of different specialists and allied health professionals in order to improve. None of these are covered by our healthcare system.
I've been waiting 12 months to see specialists in hospitals' outpatient departments as that doesn't cost money, but 12 months and counting is so tough with no help. I don't know if something is causing ongoing problems. I have had to have been ambulanced into hospital 3 times in the last few months as I couldn't breathe.
I don't know what to do anymore. I can hardly move, breathe, sleep. Long covid stops me from being able to. It's beyond belief.
I have stomach issues, sleep issues, digestion issues, severe ongoing daily headaches, I probably have POTS which causes heart and balance and fainting issues, mobility issues as long covid causes a huge amount of inflammation and neuropathy (nerve pain). If you think inflammation is painful I hope you never experience nerve pain. I can hardly even push off my feet most days to lift my legs to walk. My ankles are in terrible pain as are the balls of my feet and the area on the top of my feet. I have severe breathing issues and deep chest pain. The Outpatients departments are swamped and I'm still waiting for appointments nearly a year later.
I can't see a specialist privately as I don't have the money.
My entire upper body is in extreme pain. Only one issue has even been able to be diagnosed by a doctor who isn't a specialist and that's costochondritis. It means there's inflammation coming from the centre rib and boy is it painful. I can't afford any treatment for it. It gets me all around the mid section. It's extremely hard to take.
I have severe pain from every joint - ankle, wrist, shoulder and 12" beyond each one. My upper arms and shoulders are in so much pain I can no longer use my arms, I can't even stretch them out fully to reach things.
I can't take the pain.
I have nausea, diarrhoea, terrible pain between my shoulder blades.
My feet turn into grotesque shapes, I can't believe they can even do, whilst I'm watching it and experiencing the pain from it. It's like the worst cramp you could imagine.
I'm still coughing and suffering shortness of breath. I wake through the night with huge gasps.
I'm suffering extreme fatigue which interchanges with insomnia. Sometimes I sleep 7-9 days straight, getting up for an hour each day to just have one meal for the day.
Sometimes I can't sleep at all for days.
My vision and my hearing have deteriorated terribly. I struggle to see and I have already lost part of my vision.
I have swallowing problems - it's as though sometimes my body just forgets how to swallow. Sometimes I inhale food and sometimes it takes 10 tries to swallow a tablet.
Please help me get the help I need. I really don't want to say it but sometimes I just don't want to go on.
I sincerely apologise for asking and I wouldn't if I wasn't suffering so much.

