
Please help me get out of Newfane Rehab-Healthcare
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Hello, this is Rajiv Root and I have Cerebral Palsy. I’m also deaf in both ears as well. I’m doing fund raising in the order to get out of awful nursing home. Please read my story below. Thank you
Hello everyone! My name is Rajiv Root, and I am currently in nursing home since I left Strong Memorial Hospital in Rochester, NY. I cried as the hospital discharged me to Newfane Rehabilitation and Healthcare Center on September 30, 2022. I had no idea what a nursing home was until I witnessed what was happening to me. I remember when I was in C Wing trying to study, and all the sudden, two certified nursing assistants (CNAs) “pulled” me to bed very early at 6pm. I was not VERY HAPPY when they did that to me during the first two months. They made me wear diapers which reminded me when I did not have any access to the toilet during my teenage years. I told C Wing CNAs that I needed to pee, and they thought that I would just pee in diaper during the day. I held pee for 12 hours till bedtime which frustrated me. I have been pooping in diaper during overnight when Mirlax went through. I sleep with poop in bed. They tried to make me feed myself which was unacceptable at many levels, Eventually, I got moved to a private room several times and I remember holding pee in A-21P which resulted in 6 accidents. CNAs and NA trainees are not certified to meet my needs and they do not have any knowledge in cerebral palsy. I’m very tall and weigh 169bs. Last October, I was verbally and physically abused by CNA who went too fast trying to put me in commode and I was scared for my safety.
I did not have showers for FOUR MONTHS (Dec 2023 to March 2024) and I learned that LPNs are responsible for ordering CNAs to give residents shower every week.
This is how CNA gives me shower:
1. She gets me naked and puts mesh sling under me
2. Other CNA comes in and uses hoyer lift to transport me to commode without belt.
3. They run the commode very fast which increases the risk of getting hit on the floor
4. Washes me within 5 minutes without thinking of my psoriasis and eczema showed up on both hips/left lower leg.
5. Rushes me back to my room
Most of CNAs are very unprofessional doing their jobs and it’s getting worse. Thanks to Mike Toole who does not care about everyone, and he is close minded.


Mike's room is near COVID Zone! It happens very often.


I have to limit the amount of liquids, because I know that CNAs don’t have time to come back 4 times to help me pee. This is NOT like when I had 24hrs of assistance in my old apartment and it is getting worse and worse now. I have been in touch with John (long time best friend since 3rd grade) who is aware of my situation, and he spoke to social worker a couple times. She said that I need to pay for transportation since Medicare and Medicaid don't view this as medically necessary!

I do not have a lot of money to pay for one way through medical transportation which I was told through Priority Transit Services that they charge $8,000 for one way AND $16,000 if I bring an aide with me which he/she would return to Lockport, NY.
The most important thing is to get me OUT OF NURSING HOME. John and I bought a car which is being repaired as of April 13. He will take care of me for the rest of my life because he is a part of my family. We plan to do Christian teachings, starting a charter fishing business on the water. I am going to teach the disability community that they can do anything with God. Any amount would be greatly appreciated.
Funds would be used for:
- Hoyer lift / 2 slings
- Commode
- Belt for commode
- Food/gas
- Personal Attendants (approx $2520 based on $15/hr) till insurance changes)
Thank you and God will make a way.
For more info about me, please visit my web site at https://rvjj86.com
Organizer

Rajiv Root
Organizer
Newfane, NY