
Please help Madox get the treatment he deserves
Donation protected
Our heartbreaking nightmare started October 25, 2021. Our sweet 8 year old boy Madox had a seizure after recovering from a virus. In the following month he was diagnosed with epilepsy after an emergency visit with MRIs and EEGs. Meanwhile Maddox started having severe anxiety and depression, mood and behavior changes. Then he had another virus. Thanksgiving he had Covid and was very sick. 2 1/2 weeks later had 104 fever for four days. At that point we rushed him to primary children’s Hospital where he was diagnosed with lymphopenia and post-Covid syndrome. In December Madoxs symptoms started getting so severe he could not attend school. His anxiety and depression turned into obsessive thoughts and paranoia with delusions. Obsessive hand washing, germ paranoia, aversion to cloth and clothes. He started having nightmares. January 1, 2022 he woke up and could no longer recognize us as his parents. He had then started having hallucinations. We took him to the emergency room where they told us it could be an epileptic psychosis. He had another MRI and bloodwork that revealed no answers. Maddox was terrified and scared living in an environment with parents he did not know and thought we had been replaced by imposters and wanted to find his real family.He stopped eating and drinking and developed many other issues. His neurologist admitted him into primary Children’s Hospital where he tested positive for Covid again and underwent several tests with many possible diagnosis and was treated for autoimmune encephalitis. He started many meds in hopes that he would respond to something he was then diagnosed with Capgras syndrome. After a two week stay at the hospital we took him home where he quickly declined once again. He was in remitted into primary Children’s Hospital a month later.He was so severe at this point he had a feeding tube put in and stayed in the corner of the hospital room on the cold floor for days and would not let anyone touch him. He developed severe OCD with ticks and rituals. I can’t tell you how hard this was to see my baby go through this and not being able to comfort him. After another two weeks with no answers he came home February 27. The following week he had to be admitted into an outpatient health facility for the next 7 to 8 weeks. Where they are working on getting him to eat and drink and get better through meds therapy etc. The emotional and mental as well as financial toll this has taken on me and my little family is overwhelmingly devastating. What happened to our perfect happy child? How we long to hug and tell him we love him.The medical bills are tremendous and we are struggling greatly emotionally and financially. We are asking in this very hard time as we look for answers to help treat our baby and tackle this hardship for some financial help as well as love and prayers. Please pray for us as we search for answers for a diagnosis.Please share our story in hopes that someone may be able to help our sweet little boy come back to us.
Organizer
Desirae Schloesser
Organizer
Riverton, UT