Please Help, I Have MS(Multiple Sclerosis)
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My name is Dara, and I have Multiple Sclerosis(MS). This is a disease that has no known cause or cure & were it not for my feet and legs going numb a few years ago (which I had experienced in 2008), coupled with loosing my job, I doubt I would have had time to schedule appointments with my primary doctor and different specialists to find out the cause of my numbness and increasingly noticeable symptoms that felt like I was not only loosing my mind but the function of my body. After many MRIs, Spinal Tap, and meeting with a neurologist who specializes in MS, the diagnosis I was given by my local neurologist was confirmed as Relapsing-remitting multiple sclerosis (RRMS).
This is the most common form of multiple sclerosis, a disease where an inflammatory immune response damages the central nervous system. When talking about MS, “form” refers to a disease course, or the pattern and progression of symptoms. With RRMS, the disease course involves relapses (also called attacks, exacerbations, or flare-ups) followed by periods of remission.
RRMS can cause a variety of different symptoms. MS can cause a wide variety of symptoms, some of which are debilitating and can have a major impact on a person’s quality of life. Symptoms can include fatigue, pain, numbness or tingling in the limbs, changes in bladder and bowel control, difficulty with balance, loss of mobility, vision changes, issues with memory and concentration, and emotional changes, such as mood swings and depression.
Unfortunately, my flare up has seemingly lasted all of 2020 into the present with symptoms increasing. I feel fortunate to be working with my specialist to have medication approved by my insurance, I am still struggling to do simple daily chores and have not been physically or mentally able to work this year.
The thing that I find most frustrating is my lack of energy combined with extreme pain and stiffness throughout my body which makes even typing my story now difficult and unpleasant. That, combined with cognitive issues and difficulty walking become overwhelming and debilitating. My counselor has suggested I apply for disability and I have met with an attorney who has started the process which I am told can take up to 36months.
These changes throughout my body and mind are as frightening and painful to discuss as they are to experience. I am reaching out today because I need help, I have no income and need funds to get to and from my ongoing appointments & tests. Additionally, funds will help me to get ice which is of enormous help cooling myself down through the summer as I live off grid without a fridge/freezer and it goes quickly in the cooler (MS causes nerves to lose their myelin sheath, making them more vulnerable to heat and temperature changes. Heat exposure can cause or heighten fatigue, numbness, blurry vision, tremor, confusion, imbalance, and weakness.)
Any help you can share is greatly appreciated I realize everyone has issues they are confronting daily, too. I pray anyone reading this never has to confront MS and if you are experiencing it, I pray you are able to find a specialist and medication to slow your symptoms.
Any amount you can share is a huge help. Having a chronic disease like MS can establish a new source of stress. But stress can stem from financial worries. Too much stress may worsen your MS symptoms. Your generosity will help lessen my stress as I wait for medication approval and disability insurance. I wish you all health and happiness , thank You, Dara❤️
This is the most common form of multiple sclerosis, a disease where an inflammatory immune response damages the central nervous system. When talking about MS, “form” refers to a disease course, or the pattern and progression of symptoms. With RRMS, the disease course involves relapses (also called attacks, exacerbations, or flare-ups) followed by periods of remission.
RRMS can cause a variety of different symptoms. MS can cause a wide variety of symptoms, some of which are debilitating and can have a major impact on a person’s quality of life. Symptoms can include fatigue, pain, numbness or tingling in the limbs, changes in bladder and bowel control, difficulty with balance, loss of mobility, vision changes, issues with memory and concentration, and emotional changes, such as mood swings and depression.
Unfortunately, my flare up has seemingly lasted all of 2020 into the present with symptoms increasing. I feel fortunate to be working with my specialist to have medication approved by my insurance, I am still struggling to do simple daily chores and have not been physically or mentally able to work this year.
The thing that I find most frustrating is my lack of energy combined with extreme pain and stiffness throughout my body which makes even typing my story now difficult and unpleasant. That, combined with cognitive issues and difficulty walking become overwhelming and debilitating. My counselor has suggested I apply for disability and I have met with an attorney who has started the process which I am told can take up to 36months.
These changes throughout my body and mind are as frightening and painful to discuss as they are to experience. I am reaching out today because I need help, I have no income and need funds to get to and from my ongoing appointments & tests. Additionally, funds will help me to get ice which is of enormous help cooling myself down through the summer as I live off grid without a fridge/freezer and it goes quickly in the cooler (MS causes nerves to lose their myelin sheath, making them more vulnerable to heat and temperature changes. Heat exposure can cause or heighten fatigue, numbness, blurry vision, tremor, confusion, imbalance, and weakness.)
Any help you can share is greatly appreciated I realize everyone has issues they are confronting daily, too. I pray anyone reading this never has to confront MS and if you are experiencing it, I pray you are able to find a specialist and medication to slow your symptoms.
Any amount you can share is a huge help. Having a chronic disease like MS can establish a new source of stress. But stress can stem from financial worries. Too much stress may worsen your MS symptoms. Your generosity will help lessen my stress as I wait for medication approval and disability insurance. I wish you all health and happiness , thank You, Dara❤️
Organizer
Dara Dzurinko
Organizer
Dolan Springs, AZ