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My name is Cynthia for those of you who may not know me and I am reaching out for help because eight years ago I woke up with what felt like the worst body flu I could have imagined. My life was forever changed and became consumed by the complex world of Autoimmune. I have missed so much.
The reason for my sense of urgency today is that my inability to fight off infection has become acute and the root cause of all of my symptoms and multiple Autoimmune diseases has yet to be diagnosed. It has become next to impossible for me to live any kind of normal life and I am struggling in every way to hang on. Much of the help I need is not covered by health insurance.
I was originally diagnosed with Lyme Disease and Toxic Mold Poisoning in 2013. I had an abnormally large amount of Trichothecene Myotoxins in my body which is produced by toxic black mold. They are neurotoxic which means they can kill neurons in the brain. Mold activates Lyme if a person is carrying it in their body but is lying dormant. The symptoms are very similar.
Lyme testing is a challenge in itself as it is very difficult to get an accurate Lyme test. Much of the diagnosis is done based on symptoms. Long term Lyme disease is still not well accepted by Functional Medicine and consequently does not have a medical code and is not covered by medical insurance. Many of the Holistic Practitioners who have the most success in treating both Mold and Lyme are $350 the minute you walk through their door. Cash-out pocket. The supplements required range from $1500 to $2000 a month along with a costly and specific diet.
I had a false positive Lyme test which means that Functional Medicine which I am dealing with right now does not recognize it as a positive Lyme test even though it shows the bands that your body has been exposed to it.
I was also diagnosed with Hashimoto's Thyroid Disease. I have either Rheumatoid or Psoriatic Arthritis and UCSF is currently doing testing to hopefully get to the bottom of that. I also have Degenerative Bone Disease.
In the meantime, I was exposed to mold again which my body is unable to process and detox. It will require me to go through another detox regiment that is rigorous and you feel much worse before better. In the last year, my body has said enough and is no longer able to protect me from Viral and Bacterial Infections. I have spent the last four months and four rounds of Antibiotics trying to battle an infection that started with my foot and developed Strep A which then entered into my blood becoming quite critical. It continues to come back and has made it virtually impossible to function. The pain has been unreal.
Every day I live with chronic joint and muscle pain much like the body flu and being slammed by a Mack truck. I struggle with memory loss and it is often harder for me to stay focused. I deal with a very difficult challenge with my skin which has become highly sensitive to Chemicals, Heat, Mold, and certain types of material. I often have Vertigo and am sensitive to noise and light. I use to have times where I felt better than others. I no longer have that reprieve.
It has been very hard to bring myself to ask for help but after 8 years of fighting this battle, I am unable to earn any sort of stable income. I need a reprieve while undergoing very extensive testing and I need to be able to do both Functional and Integrative Medicine if I want to make it through this. I need to be able to seek out alternative treatments. I will get worse before I get better and stress plays a critical roll in Autoimmune.
My son needs me and I need to find a way to live. I am confident it can be done if we can get the proper diagnosis and treatment. I appreciate your taking the time to read my story and if you can help there are no words to describe my gratitude and if not that is ok. I hope I can somehow help you with my story.
According to the National Institute for Health Autoimmune Diseases are a family of more than 80 Chronic, often debilitating and life-threatening illnesses affecting more then 23.5 million Americans and the prevalence is rising. It is the leading cause of death for young and middle-aged women in the US.
The reason for my sense of urgency today is that my inability to fight off infection has become acute and the root cause of all of my symptoms and multiple Autoimmune diseases has yet to be diagnosed. It has become next to impossible for me to live any kind of normal life and I am struggling in every way to hang on. Much of the help I need is not covered by health insurance.
I was originally diagnosed with Lyme Disease and Toxic Mold Poisoning in 2013. I had an abnormally large amount of Trichothecene Myotoxins in my body which is produced by toxic black mold. They are neurotoxic which means they can kill neurons in the brain. Mold activates Lyme if a person is carrying it in their body but is lying dormant. The symptoms are very similar.
Lyme testing is a challenge in itself as it is very difficult to get an accurate Lyme test. Much of the diagnosis is done based on symptoms. Long term Lyme disease is still not well accepted by Functional Medicine and consequently does not have a medical code and is not covered by medical insurance. Many of the Holistic Practitioners who have the most success in treating both Mold and Lyme are $350 the minute you walk through their door. Cash-out pocket. The supplements required range from $1500 to $2000 a month along with a costly and specific diet.
I had a false positive Lyme test which means that Functional Medicine which I am dealing with right now does not recognize it as a positive Lyme test even though it shows the bands that your body has been exposed to it.
I was also diagnosed with Hashimoto's Thyroid Disease. I have either Rheumatoid or Psoriatic Arthritis and UCSF is currently doing testing to hopefully get to the bottom of that. I also have Degenerative Bone Disease.
In the meantime, I was exposed to mold again which my body is unable to process and detox. It will require me to go through another detox regiment that is rigorous and you feel much worse before better. In the last year, my body has said enough and is no longer able to protect me from Viral and Bacterial Infections. I have spent the last four months and four rounds of Antibiotics trying to battle an infection that started with my foot and developed Strep A which then entered into my blood becoming quite critical. It continues to come back and has made it virtually impossible to function. The pain has been unreal.
Every day I live with chronic joint and muscle pain much like the body flu and being slammed by a Mack truck. I struggle with memory loss and it is often harder for me to stay focused. I deal with a very difficult challenge with my skin which has become highly sensitive to Chemicals, Heat, Mold, and certain types of material. I often have Vertigo and am sensitive to noise and light. I use to have times where I felt better than others. I no longer have that reprieve.
It has been very hard to bring myself to ask for help but after 8 years of fighting this battle, I am unable to earn any sort of stable income. I need a reprieve while undergoing very extensive testing and I need to be able to do both Functional and Integrative Medicine if I want to make it through this. I need to be able to seek out alternative treatments. I will get worse before I get better and stress plays a critical roll in Autoimmune.
My son needs me and I need to find a way to live. I am confident it can be done if we can get the proper diagnosis and treatment. I appreciate your taking the time to read my story and if you can help there are no words to describe my gratitude and if not that is ok. I hope I can somehow help you with my story.
According to the National Institute for Health Autoimmune Diseases are a family of more than 80 Chronic, often debilitating and life-threatening illnesses affecting more then 23.5 million Americans and the prevalence is rising. It is the leading cause of death for young and middle-aged women in the US.