Please help Celeste & David Through Their Heartbreaking Loss

Where to begin? Usually, words are a strong point for me personally, but the early morning hours of Tuesday, January 28th, 2025, changed that for me. Now the words just seem to keep escaping me. You see it happen but never think it will happen to you. For my daughter and her boyfriend, this tragedy has become a reality.

At 30 weeks of pregnancy, Celeste and David learned that their baby Jaxson had shown that he was going to be born into this world needing extra love and care. We learned he had a malformed vermis that connects the cerebellum and also that his aortic arch was facing in the opposite direction. Jaxson decided he wasn't going to wait around until February, so this precious little fella made his grand entrance into this world on January 10, 2025. Thankfully, Celeste had a very fast and successful delivery. Also, thankfully, at birth, Jaxson did not show any immediate concerns. However, Jaxson was diagnosed with Dandy-Walker Syndrome, and they discharged them with instructions to follow up with a pediatric doctor and the heart and brain specialists.

Jaxson made it to his 2-day check-up, his 7-day check-up, his 14-day check-up. Sadly, he did not make it to the specialists. He was rushed to the emergency room at 18 days old and did not leave to go home with Celeste and David. Instead, for reasons unknown to any of us here on earth and only known by God, God decided to bring baby Jaxson home with him instead. I personally, for the first time in my lifetime, didn't have any answers for my daughter. I couldn't fix this type of pain for them. I've been so helpless. The examiner called us and said it was a vascular ring; there wasn't anything she could do. They said she did everything right; she did everything she could and even more than that within the last 18 days of his little life. The examiner said they could tell he was very well cared for but was just a very sick little boy.

Such a young couple losing their newborn baby so suddenly is so incredibly devastating. I know it may be hard times for everyone at this moment, and I know money will not mend or fix any of what they are going through. It may just help to lift some of the weight of everyday life. I struggled with a number to put because there isn't a number high enough that could ever fill Jaxson's place. I know they would be forever grateful for any type of support that is sent. Thank you so, so very much.