Hello my name is Daisha and I am fundraising for my son Caleb Christian. Caleb has a rare skeletal developmental disorder called Trevor's Disease which is characterized by asymmetric overgrowth of cartilege in the epiphyses. This is a lifelong disease that can cause deformities in extremities and needs to be monitored regularly.

                Caleb was diagnosed on June 15th of 2020 at the age of two after a year or so of trying to discover what was going on with his walking gate. We found out that at his left femurs growthplate, next to the knee, cartilage started to grow abnormally and forced the bone to grow crooked. This caused his leg to essentially go sideways at the base of the femur. This caused many walking and stablility issues.

                After a biopsy of the knee we decided to go ahead with a surgery that would straighten his femur to allow for more aligned bone growth and give him better quality of life. This surgery was done in May of 2021, The surgery involved cutting his femur above the growth plate and rotating it to align the bottom half of his leg with the top. His left distil osteotomy paruticles were pinned and he was put in a spica cast for 7-8 weeks. We spent 2-3 days in the hospital recovering. When the spica cast was removed Caleb was enrolled in physical therapy 3 times a week and is still currently enrolled.

                There is no cure to this disease and he will have to monitor and manage it for the rest of his life. We have been told that playing sports will be very difficult for him. The doctors that he has seen tell us that they have not seen this disease in such a variety of places compared with other patients. My son still cannot walk straight and has stability issues. Everywhere we go people around us ask "Why does he walk like that?" and "Whats wrong with his leg?" Some days he cannot walk at all, his knee completely locks on him and causes severe pain. There are nights where I have to rub his knee for 2-3 hours just to get him to sleep because his knee is throbbing.

                Recently we were reffered to the medical professionals at the Childrens Hospital of Philadelphia. We are going soon to see a professional who has worked with patients who have the severity that Caleb has. We are from Upstate NY and this will be a bit of a drive for us. Please consider helping Caleb get to CHOP anything would be appreciated ❤️