Please help 12 yr old Shyanne in ICU

1/21/24 Update on my girl:

Yesterday morning Shyanne Hatley had ultrasounds on both legs and both kidneys to look for clots. Both came back good, praise God! She then went into surgery at 11:30am to place a perma port in her chest for continued dialysis. The doctors said that this line would be much more comfortable since she will need dialysis longer than they expected. She slept most of the day yesterday after surgery.

This morning at 3:30am she woke up very sick throwing up and very nauseated. This has lasted all day long. She has also had a very tough time catching her breathe and breathing so they have her on oxygen again. The doctors did a chest x-ray first thing this morning to make sure the port still looked good and they noticed fluid in her chest, so they said dialysis today would likely help with that.

We started dialysis around 1pm and unfortunately, we had to stop mid treatment because she just kept throwing up and feeling miserable. Each time she would vomit the dialysis machine would alarm and the venous numbers would go up. By the time the nurse got to flush back, her line had already clotted off, so she lost all the blood in those lines. This was very unfortunate because her hemoglobin has been low and she just received 2 units of blood the day before yesterday :( This then caused her new port line to also clot and the nurse couldn't get one of the ports to flush back. This was super scary because she just got the port and now the doctors thought that she would have to go back into surgery to have it replaced with a new one.

Luckily around 7:45pm the surgery team that placed the port was available to come to our room and try and save the port. Praise God they were able to successfully remove the clot at the tip of the port and get it flushed and working.

We will have labs tomorrow morning to see how her kidneys are doing and to see if she will need dialysis tomorrow. I am praying for good numbers because her poor body needs a break. She has been in a tremendous amount of pain and just so sick.

She can now move her arms more freely and reach above her head!! She just cannot grip anything yet. Her legs still have very little mobility, and it is very painful to move them.

My poor baby is so ready to be home and in our comfort zone. She keeps asking " mom why did this happen to me? Will I ever get better?" As a mom, no knowing what to truly say is so heart breaking. I would gladly take her place in a heartbeat if I could!

Thank you so much to those that continue to pray for us and reach out and check on us. I try and answer the messages as they come in. but sometimes get busy with things going on and forget so I apologize for that! We still have such a long road ahead of us. We still need all those prayers, because God is good and I know that he listens and answers our prayers in his time.

Love,

Heather & Shyanne

1/15/24 Today's update:

Today has been a good day for my girl. We started Dialysis at 6:30 am this morning and finished by 11:00am. Dialysis really made her itchy today. They were able to remove 5.4 lbs of fluid off of her.

Dialysis usually wears her out pretty good, so we came back to the room and ate lunch and she took a long nap.

When she woke up from her nap, she realized that she could finally lift her right arm above her shoulder! Praise God!!! We were both so Happy and excited !!!! This was a HUGE milestone in her recovery!

She still cannot move her legs on her own or her left arm and can barely move her hands. BUT its steps in the right direction and I thank God for every baby step we get!!

Tomorrow she will have a day off from dialysis for her body to rest. She is on a fluid intake restriction and that is super hard for her as she is soooo thirsty. Her kidneys are starting to produce tiny amounts of urine and that is wonderful news, but they still aren't where they need to be.

We still need lots of prayers as she has a long road to recovery, and it is very hard on her emotionally. She wants to walk and be back to normal so bad. She misses home and all of our fur babies. She also misses school and all of her friends. Missing her band concert coming up is hurtful.

So, please continue to send prayers for my sweet girl that her kidneys will continue to produce more urine every day, that she will continue to gain mobility with the more fluid that dialysis is able to remove, and for strength for her mental health.

We love and appreciate each and everyone of you all that continue to send love and prayers. <3

1/12/24 Update on my girl:

Today has been a good yet emotional day. A good day because we were moved to the step down unit as Shyanne no longer needs to be in the PICU. She is stable enough that she can be in a more private room and continue to get dialysis and physical therapy.

Her kidneys are still not producing any urine and she is still very very swollen. She is restricted on fluid intake as her body isn't letting anything go. Her electrolyte and CK levels are still out of wack and not where they need to be.

She had physical therapy twice today and each time was very tough on her both physically and emotionally. She still cannot move her arms, legs, hands or feet without assistance and it is very painful when she does move them. It is very hard on her emotionally not having the function of her arms to feed herself, her legs to walk or even be able to sit up in bed by herself.

Watching your child cry out in pain is the absolute hardest thing on a parent when there is absolutely nothing you can do to make it better. I would give anything to take her place and take it all away from her.

For now we will continue our stay here at Wake Forrest Baptist Hospital and continue getting dialysis dailey or every other day depending on her lab numbers and extensive physical therapy. The physical therapist said it is likely that she may need extensive rehab after she is discharged from the hospital and it would be her recommendation to refer us to Levine children's hospital in Charlotte for dailey therapy. Although we are no where near being discharged this is heart breaking to hear as we both just want this nightmare to end and for us to go home. Shyanne especially is so ready to be home and back to her usual self going to school, riding horses and just being a preteen.

Thank you so much to everyone that continues to pray for us, support us, check in on us and donate so that I can be here with my baby without the financial burden and worry of bills etc. You all are truly amazing souls and very much our angels throughout this experience. It is with you and God above that makes this a little easier on us.

We are truly blessed to have so many friends, family and Co workers that love and support us! We will forever be greatful! Please continue to pray as this journey is not yet close to being over.<3

1/10/24 Praise report for Shyanne Hatley

The doctors removed her vent this morning and she's been able to drink some fluids and talk some. This all makes my mama heart so happy. Just to hear her voice again!

Her kidneys aren't producing any urine so we still need LOTS of prayers for that to happen. Electrolytes and CK levels are still off so we need those to level out as well.

Baby steps in the right direction but I'll take it!

I was able to tell Shyanne about all of the angels we have had out there praying and helping us through this! She says to tell everyone Thank you! She's working really hard to do everything the doctors ask of her to get better!

We love and thank each and everyone of you that has helped us, prayed for us and checked in on us! You all are a true blessing! Keep those prayers coming! They work! Praise God above!

(Laurel) your loving donations have helped Heather pay her bills during this time she's out of work as a single mother as well as help pay for gas for her 2.5hr drives to wake hospital. I know she'll also also be facing lots of medical bills in the future as well, and your donations will help her get a Jumpstart on those. If nothing else, we can help ease her stress load enough so that she just focus on her baby girl during this time. Every bit helps and especially the power of prayer!)

Update 1/8/24 - Today has been a busy but pretty good day. The doctors have backed off the ventilator some so Shyanne can breathe on her on as much as she can. She was seen by PT and OT today to be assessed. They hope to have her back to her normal self when she is ready but say that she will need out patient therapy and will have to learn how to walk again and use her hands again. Super tough to hear as most of you know Shyanne rides horses and won't be able to do this for some time.

She is still on 24 hour dialysis which unfortunately has clotted off twice already. Today it clotted off at the central line (which is in her jugular) and they had a hard time removing the clot. It was super scarey. One wrong move and it could have dislodged but God is good and it was successfuly removed and the line was saved.

I have been able to get her to open her eyes and look at me today several times and that has been a huge blessing. I'll take any step in the right direction that I can get.

I just want to wake up and this nightmare be a bad dream. Hold your babies tight because you just never know what the next second will bring.

we will take all the prayers we can get! They really do work! - Heather

1/7/24 - Hi my name is Laurel and below is my friend, Heather Hendrix, pleading for help and prayers for her baby girl. Her daughter's name is Shyanne and is 12 yrs old fighting for her life in the ICU after contacting the flu. Heather is a single mom and a phlebotomist who is a truly loving wonderful person. Below is her story. Please read and help in any way you can. Additionally, if you prefer venmo it's @hendrixh917

Latest update on my girl: and long post

The ceiling tile in Shyannes room at Spartanburg Regional really spoke volumes to me (it was a drawing of an angel in pink). We really truly have had an army of angels around us both near and far.

The last 3 days have been the hardest, most terrifying days of my entire life. As most of you know my girl was diagnosed with FLU A on Tuesday.

By Thursday evening we started out at advent health with excellent care but unfortunately they had no pediatric unit so we were transferred by ambulance to Spartanburg Regional late that night.

The following day we learned that Shyannes kidneys were over working trying to flush out all the toxins from the flu and the CK break down of the muscles. Her sodium levels were dangerously low and her CK levels were through the roof.

She had lost function of her arms and legs and couldn't move them herself. By Friday night the physicians at Spartanburg Regional knew things had taken a turn for the worse and they needed to get shyanne somewhere better equipped to handle her kidney situation and fast.

So by Friday night my nightmare begun and Shyanne would need to be airlifted to another hospital to help her fight this and fight it fast, only there were no hospital around with any beds open.

I thought to myself " oh God please help us find a place to accept my baby girl, I can't lose her, what am I going to do without her?"

11:30 came and finally we had a bed at Wake Forrest Baptist Hospital in Winston Salem. Regional 1 was there to load up my only baby and fly her away without me. I knew God had her and the entire helicopter in his hands and would get them there safely even with the oncoming storm.

I made the 2.5 hour drive alone with many people praying for us and talking me through every mile.

We got settled in and finally got a few hours of rest.

By 3pm Saturday we learned that Shyannes numbers had continued to go in the wrong direction her potassium was sky high and it was critical that they start dialysis asap so a central line would need to be placed.

4pm the surgeons came to her bedside to perform the procedure and get her ready to start.

5:30 I was allowed back to see my girl because the procedure had "went well."

5:35pm her machines started going hay wire, she was gasping for air, and her blood pressure and pulse had bottomed out. She was turning blue.

I was asked to step out because my baby needed to be Intubated to secure her airway and save her life.

6:20pm a Chaplan got off the elevator and prayed to God above with me that he interven, place his angels around my girl and all the many doctors and nurses trying to save her. I was in histerics crying, alone and terrified.

6:40 The doc came out and said she is stable, Intubated and we have started dialysis but will need to start another central line for blood pressure meds and fluids.

9:40pm I am finally allowed to see my baby after hours of worry crying out to God on my knees and begging for his mercy.

Shyanne is now on a ventilator, a 24 hour dialysis machine and hooked up to so many cords and tubes that I can't count.

The ventilator will help take all the stress off of her tired body and help her breathe while the dialysis machine filters out all those terrible toxins.

We aren't completely sure how long it will take to get her where she needs to be so for now we will take it minute by minute hour by hour. And when she's stable we can discuss removal of the vent.

This has been the worst 3 days of my life.

With all of that said I have to Thank OUR ARMY OF ANGELS!!!

The out pour of love and support from friends and family have been truly heart felt and will never be forgotten.

From Phone calls, texts, lots of prayer chains, venmos/Zelles for food and gas and things we need while unexpectedly away from home for who knows how long, trips here just to be with us and bring us clothes, nurses and staff that comforted us and held our hands and prayed for us, to keeping our fur babies and helping be our communicator.

Shyanne and I want to Thank each and everyone of you from the bottom of our hearts. I truly could not have gotten this far through this ordeal without each and everyone of these Angels! You know who you are, there's been too many to tag or count and I don't want to forget to tag anyone. So THANK YOU!

I know we still have a ways to go before we are in the clear to recovery but with these angels, guardian angels and God by our side I know that my baby will surely come out on top of this!

Heather