Please hear my humble plea for help. EGPA sucks!

Please hear my humble plea for help. EGPA sucks! campaign photo, 1 of 3Please hear my humble plea for help. EGPA sucks! campaign photo, 1 of 3

62 donors
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$5,525 raised of $14K

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Please hear my humble plea for help. EGPA sucks!

Please hear my humble plea for help. EGPA sucks!

0% complete

$5,525 raised of $14K

62 donations
Donation protected
Dear friends and kind hearted supporters,

It’s been 2 long years of uncertainty and suffering for my family and I and I finally have the courage to ask for help.
Trying to be positive and remain strong throughout unimaginable circumstances has been real difficult. Feeling down and overwhelmed I humbly plea for your help and support.

In June 2022 I was diagnosed with a very rare disease called “The Churg Strauss Syndrome” or also known as EGPA (eosinophilic granulomatosis polyangiitis) with lung, sinus, and nerve involvement.
“EGPA” attacks the small and large blood vessels by restricting oxygen supply to it and ultimately damaging organs and tissues. EGPA causes fatigued, dizziness, shortness of breath and a general feeling of being unwell throughout the day. 
Being weak and sick all the time became apart of life, after many months passed by and no signs of improvement on the amount of blood I lost. 
Coughing up dead blood tissues and coughing up blood clots throughout the day fighting for a good breath of air became a normal thing.  
Stiffed and swollen, my joints aches in pain, making simple daily activities like getting in and out of bed, getting dressed, and even walking became a hard task.
I am not feeling very well currently but trying to remain optimistic so that I will not fall into much more despair and a deeper depression.

Defeated, I come to you today for your hands in support and prayers.
Please help me be less of a burden to my family and friends.
My heart is heavy with stress and sorrows from financially burdening them throughout the course of my journey
my health issues, trips to the hospital, and loans to pay bills (that’s so deep behind) from the impact of EGPA and my inability to function as I normally would before all the treatments, was becoming unbearable. Getting up for work seemed harder as the disease progresses and fatigue sets in, with constant doctors visits, ongoing treatments, and infusions my body started to tell me I am not strong enough to handle normal day to day activities anymore, which impacted my attendance at work.
I am reaching out to you today to ask for your support in the most challenging steps of my journey to find remission or keep control of the disease.
The financial burden of medical treatments, experimental therapies, traveling to and from appointments, and depending on others for help is taking a huge toll on my mental health and with January rolling in, my deductible resets bringing me deeper in medical bills again. I am defeated.
I have created a GoFundMe campaign to alleviate this burden and ensure that continuous treatments can be provided while I heal and try to recover from the financial burdens from my medical expenses and be able to pay my utilities and rent and have food for my family.
Your contribution, no matter the size, will make a significant impact on my life, Additionally, I humbly ask that you share my plea for help with your network, helping my story reach compassionate hearts who may be willing to join me in this fight.

Your generosity and kindness will make a meaningful difference during this incredibly difficult and challenging time.
I am forever grateful for your kindness.
Thank you for listening.

My goal is to use the funds for: 
1. Health insurance deductible $7000
2. Catching up on Utilities and rent $3500
3. Continuous treatments $2500
(Copays, prescriptions not covered, special treatments)
4. Funds to commute to Boston weekly $700
Infusion dates:
  • December 12, 2023
  • December 27, 2023
  • December 29, 2023
  • January 02, 2024
  • January 11, 2024
  • January 17, 2024
  • January 25, 2024
Donate

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Organizer

Manyvone Sengsavang
Organizer
Woonsocket, RI
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