My daughter, Alicia, age 32, was diagnosed with a very rare, but dreadful, debilitating painful disease, called Calciphylaxis about 6 months ago. At the time of her diagnosis, this is something we had never heard of before.
We live in Louisiana, and we are finding out at this point, and after considerable progression of this disease, that the physicians here are not experienced with treating Calciphylaxis.
As her mother, I feel helpless, because I feel like there is nothing I can do to help her. To sit in her hospital room and hear her cry out in pain is torture and I try to stay strong, especially in front of her, but it is extremely hard.
My daughter is a fighter, and right now, she is fighting for her life. Alicia has a 12 year old son that needs his mom, and he is the main reason she is fighting so hard to stay alive.
Although Calciphylaxis has been classified as terminal, there are many success stories of patients that have been healed, but they have been treated by physicians that are much more experienced in treating this disease.
We have hired a patient care advocate to assist us with finding expert care for Alicia. After speaking with personnel at some of the facilities where we are seeking treatment, I found out that expenses for her medical care will greatly exceed what her insurance will cover. These facilities are all located out of state and even having her air lifted will be expensive.
Alicia will need numerous debridement surgeries, so our family would have to relocate for a minimum of 3 months, could be much longer.
We are asking for a lot of prayer. We are also hoping that you can make a donation to help with medical expenses and relocation expenses for the family. Any amount will be appreciated, no matter how large or small.
If you cannot make a donation, then please say a prayer for her, and either way, can you please share, share, share this post.
I have included a photo of Alicia and her son, Kameron.