Pia is our 2 -year old daughter diagnosed with Cerebral Palsy.
Pia is in need of a life changing surgery, SDR, which will allow her to walk and live a life free of pain.
Pia needs your help.
Thank you for reading her story.
We know Pia's future is full of hope.
But we need your help to make that happen.
What We Need
We need your help to keep the way bright and hopeful for Pia’s Path to Walk.
We need your help to give her the chance to run around with her twin brother, Felix, hike with us as a family, climb stairs, ride a bike, splash in the rain puddles and bath tub, play with friends, pick up leaves in the fall.
We need your help to give her the independence and dignity she needs and deserves now and for her future, from moving, eating, dressing and going to the bathroom on her own.
All of those things you wish and dream for your own children, we wish for Pia.
We are willing to do whatever it takes to support Pia.
But we can't do it alone and we need your help.
For Pia, the main battle is against her constant muscle tightness (spasticity). While CP itself isn’t degenerative or progressive, spasticity is!
As time goes by, it will cause permanent deformities in Pia's bones and muscles that cannot be fixed.
This is why it is so important to reduce or eliminate the spasticity at an early age.
This brings us to today.
We are currently in the application process for SDR to be completed by Dr. T.S. Park at St. Louis Children’s Hospital in St, Louis, Missouri in the United States. We are hoping Pia will have SDR sometime during 2019.
What is SDR?
In 'simple' terms, SDR involves removing some bone from Pia’s spine to access her spinal cord.
Dr. Park then tests and cuts the dorsal nerves (50%-70%) that cause her spasticity, significantly reducing or permanently removing the constant tightening of her muscles.
What will your donation support right now?
The SDR surgery and the years of required physical therapy following. As we are not residents of the US, we are responsible for the costs and it is not covered by our insurance here in Germany.
After surgery, Pia will require physical therapy 5x/week for the first six months, 4x/week a week for the following six months and 2-4x/week for at least the following two years, based on her progress.
Based on information provided by St. Louis Children’s Hospital, the surgical costs, mandatory post-op therapy and rehab, flights, accommodations and required physical therapy and strength training for 2-years following the surgery, we need to raise $125,000 USD.
Our commitment to SDR and the required physical therapy following surgery means great changes
to our ability to work and earn income for the future.
Give Pia the Gift of Movement
Support Pia's Path to Walk
If you would like to send an offline donation,please contact us at www.piaspath.com or info(at)piaspath.com and we can provide additional information.
Visit our website for additional information:
- Jahnay Pickett
- Allison Mears
- Pamela Greaney
- Paul Comes
Jamie Clark Mueller
Gärtringen, Baden-Württemberg, Deutschland