- A
- L
- R
Hi my name is Sam, I recently met the daughter of one of my sons old school friends, Every now and again you come across someone that touches your heart, someone that shows you how fortunate your are, someone that shows you strength without saying a word...Im talking about a happy little 9 year old girl called Phoebe, severe disability with two rare genetic disorders running side by side, Bainbridge Roper syndrome and Alazami syndrome, I would love to create a special moment for this little girl she really deserves that and so do her family who work tirelessly on the daily bases the things we take for granted, but i will need your help my goal to raise enough money to send her and her family to Disneyland Paris...its doable with help, so im asking for help to help me to help her have a special moment and time with her family after speaking to mum and dad, she would really love to visit Disney land, what little 9 year old girl wouldn't.
I want to be able to do a little something for a little girl who's life is very different to most 9 year olds.
Bainbridge Roper syndrome, a neuro development problem that is incurable, requires a team of specialist, round the clock caring from mum and dad and also her brother and sister, physio speech therapy and behavioural intervention if that's not enough she also has Alazami syndrome which runs parallel with this, with similar problems, shes a lovely girl and her parents do an incredible job tending to her needs.
Please help me make this once in a lifetime trip possible for her and all of her close family.

