
Phil takes on the Rally Round Rupert Cotswold Way 2024
Do you want to join me in making a difference? I'm raising money in aid of RALLY ROUND RUPERT and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.
Between the 21st and the 23rd of June 2024, I will be one of 100 volunteers attempting to walk the entire length (over 100 miles) of the Cotswold Way, to raise awareness of the condition and funds in support of clinical research. In addition, the team will attempt to transport Gary and Stan, both who have SMA Type 3 (a variant of the condition that onsets later in life) the entire length of the route in a custom-built wheelchair. In doing so, the charity aims to shine a light on the current levels of inaccessibility, typical of most UK rural walkways. As part of this journey and where necessary, Gary and Stan will be lifted over styles and parts of the route that just don’t allow those with restricted mobility to access – a truly symbolic journey
More information about RALLY ROUND RUPERT: To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by: a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public. b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).
Organizer
Philip Muff (Organizer)
Organizer
England
RALLY ROUND RUPERT (Beneficiary)
Beneficiary