My son Jameson has an extremely rare genetic disorder known as Phelan-McDermid Syndrome. Every two years, the Phelan-McDermid Syndrome Foundation holds a conference where families of those affected can network, attend educational panels, and learn about the most recent research into the Syndrome. It can be a life-changing experience, and can provide families with much-needed support and a better understanding of the challenges (and advancements) that lie ahead. My family attended the 2012 Conference, just after Jameson received his diagnosis. It was incredibly helpful, but there have been many new discoveries regarding the Syndrome since then. Financial constraints have prevented us from attending the past two conferences, but we are hoping that—with some help—we will be able to attend this one. If you can help in any way, we greatly appreciate it. If you are unable to assist at this time, could you please share the link? I know that Jameson has such amazing people who love him and want the best for him, and we have such great love and respect for all of you.
Thank you so much!